Worried about swelling after meningioma removal

Posted by burkerj001 @burkerj001, Jun 18 5:23pm

I am four months post meningioma removal anterior fossa, approach was craniotomy right side behind hairline. I recently had an onset of swelling like a golf ball size adjacent to surgical site temple/forehead/eye area which shows on CT as soft tissue swelling, no intracranial abnormality. Surgeon is having me get an early MRI, blood work and follow up. He does not seem to be concerned with anything other than an infection. I’m pretty freaked out as it’s not going down. No neurological symptoms like you would get with a CSF leak. Praying the MRI does not show any concerns, but in the meantime, why do I have this, how long will I have it and has anyone had experience with this? You think you’ve had a successful surgery, with complete removal of a benign 🙏tumor, and then something new pops up to stress you out all over again. Thanks for listening! 🫶🏼

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Profile picture for burkerj001 @burkerj001

@susanf60s Yes! This was also strictly under my scalp, but shunt not required. Oh my, please post an update and I’ll pray for him and you! I worry about regrowth as well.

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@burkerj001

Thank you for your prayers! Reece is back in the hospital. Pic line delivering a specialized cocktail of antibiotics to kick his infection. Shunt is in, too. He's had 9 tumors and corresponding surgeries since he was 9 yo. Problem now to keep him from pulling his tubes out when waking.

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Profile picture for susanf60s @susanf60s

@burkerj001

Thank you for your prayers! Reece is back in the hospital. Pic line delivering a specialized cocktail of antibiotics to kick his infection. Shunt is in, too. He's had 9 tumors and corresponding surgeries since he was 9 yo. Problem now to keep him from pulling his tubes out when waking.

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@susanf60s
Oh Susan, that is so unfair for a such a young man 😢. I need to remind myself there are always people with much worse problems than my own…. Thank you for sharing his status. I will ask my small group at church to pray for him as well if that’s ok? 🙏

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Profile picture for burkerj001 @burkerj001

@susanf60s
Oh Susan, that is so unfair for a such a young man 😢. I need to remind myself there are always people with much worse problems than my own…. Thank you for sharing his status. I will ask my small group at church to pray for him as well if that’s ok? 🙏

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@burkerj001

Thank you for all prayers. Very appreciated.

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