Kevzara and Prednisone Tapering before and during Kevzara

I've had one or two possible symptoms of GCA since Thursday, but on Saturday I had pain on the top of my head, at the base of my skull and in my right temple, plus pain when chewing. I decided to let the ER check it out. It's not GCA, but probably migraines. I never had one before so I had no idea what one felt like or knew that not every migraine is debilitating. Prednisone tapering causes many changes in our system and can cause migraines.

I have been on Prednisone for a year and a half. Started at 15 mg and am now still at 7 mg. This winter I did a four month experiment with a Humira biosimilar and saw no improvement, actually a bit worse with the PMR. I am now in my third month of Kevzara with 7 mg of Prednisone. My condition seems to be getting worse, not the typical sick and wrong pain of PMR, but numerous other issues: Weaker, balance issues, lots of extreme hand pain and strangely, skin breaking out on my back and itching like mad. I am trying to muscle through this new four month experiment but it is getting tiring and frustrating. This disease is truly a nasty and life-changing problem. Yes, it is not cancer but we still are having our lives turned upside down and as far as I can see with no real hope of ever getting better. I am 79 so be it I guess. Thank all of you for this chat room as most folks have no idea of what we are going through.

@danboldman Hi... I had some of your issues when I was on both prednisone and kevzara. Once off prednisone many of the "issues" disappeared with time. The way I would describe it was... "I had the pain of the month... started out of nowhere and left as it started". Itching, skin breaks, aches here and there as well as muscle/tendon/ ligamement aches/pains. Balance issue sudsided with time when off prednisone and balnce exercises as did my head being in a cloud.

Thanks, I hope that it all works for me as it did you. Be well my friend. Haha an understatement on this site.