1. < Gynecologic Cancers
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What helps prevent recurrence of endometrial cancer?

Posted by pangasinan143 @pangasinan143, May 28 12:26pm

I want to know more about endometrial cancer
* post treatment
* prevention of recurrence

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

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1995victoria | @1995victoria | 1 day ago
In reply to @jeanadair123 "That’s a million dollar question unfortunately all you can do is be proactive and make sure..." + (show)
Profile picture for jeanadair123 @jeanadair123

That’s a million dollar question unfortunately all you can do is be proactive and make sure you get all your check ups. I had uterus cancer 2009 recurrence in 2016 after being told I was cancer free and there was only a 1% chance of recurrence. It never occurred to me that I would be in the 1%. I had my hysterectomy in Texas and we moved back to California. I went to 3 gynecologists but not one of them would use a speculum because of my low risk, fourth doctor I insisted and she said ok but I doubt you will have anything, WRONG.. recurrence. I had to have radiation and brachytherapy. If you learn anything from this don’t rely on your doctors they don’t always know what the right thing is for you? Just be PROACTIVE it will save your life. My new gynecologist oncologist is very through but at my last visit she mentioned a doctor that would be joining her group I said he was one of the doctors who wouldn’t use a speculum…..what could she say?

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@jeanadair123 I'm curious Why no speculum? Every gyno I've ever been to has used speculum, so wonder what the problem is and why they don't use?

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1 reply
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cookercooker | @cookercooker | 1 day ago
In reply to @inquirer "These are my personal notes from research on supplements. Each is listed with the amount taken..." + (show)
Profile picture for inquirer @inquirer

These are my personal notes from research on supplements. Each is listed with the amount taken (for example "[8p2x Empty]" = 8 pills 2 times per day on an empty stomach) and a reminder to myself of why I was taking it. My goal was to slow the growth while waiting nearly 2 months for surgery. After surgery, I was diagnosed stage 1a.
Of course, none of these can be proven to have played a role.

LEADING UP TO SURGERY:

** [8p2x Empty] IP6 Gold w Inositol
"Reduce tumor growth and cancer cell proliferation"
** [1p1x Empty] EGCG (Life Ext decaf)
"Promote cancer cell death and inhibit growth"
* [10g2x Empty] Colostrum (Anovite)
"limited trials show anti-cancer effect"
** [1p2x] BioPerine, iherb
"To enhance absorption of supplements]
** [4p3x] GZFL "Proven in trials to reduce OC size"
** [1p1x] Turmeric (Now CurcuBrain Longvida)
"kill cancer cells and prevent growth"
** [1p4x Food] Tumeric (Now curcumin Meriva)
"kill cancer cells and prevent growth"
** [2p1x Food] Kirkland Tumeric
"kill cancer cells and prevent growth"
** [1p1x Food] Kirkland Fish Oil Omegas
"inhibit formation of new blood vessels in tumors"
** [1p1x Food] D3 Cstco Ntr Bnty
"Reduce cancer mortality"
** [1p6x] Flaxseed oil, Erewhon
"Promote cell death in late stage OC"
** [1p1x] Claritin
"Improve survival outcomes"
* Essiac Tea
"Has natural anti-cancer agents"
(Jeans Greens, 1-888-845-8327) drink 4oz 2x/day on chemo & 2oz 2x/day for life Note: (http://www.rem tvedies.net or Shoppers Drug Marts in Canada or Elaine Rylin in Roundup, MT 406-323-2201)
** Mineral Water naturally filtered and sourced to retain minerals
"Cancer survivor in Radical Remission" (Ex Mountain Valley & Mountain Falls)
* Ginger Tea
"kills OC cells" Fresh ginger root; Cut 25 1/2" cubes; Boil in 7 cups water; Stew for ~hour; Strain out cubes; ACV for taste; Store in fridge; drink 1 warm cup per day:

AFTER SURGERY:

** IP6 Gold w Inositol
** GZFL
** Essiac Tea
** Mineral Water naturally filtered and sourced to retain minerals
** Ginger Tea

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@inquirer Wow! That's a huge list. Confusing at best, the scheduling at it's worst. Do you have any free time to eat real food? I am told to report any new drugs or supplements to my oncology team before taking them. They vet what will do no harm or interfere with the chemo. I'm on a target therapy called Enhertu, as a clinical study participant. As you can imagine, in keeping with protocol, they are very strict on what else goes into my body. D3, B12, magnesium and calcium are approved and recommended for my condition -- serous cell endometrial cancer HER@ 2+ stage 31C. Pretty bad one. Despite the meager supplementation, I am NED with normal ca markers 125, 15-5, 19-9. My blood panel finally a normal results after 1.5 years on the treatment. I also attribute the outcome to a few days of Jazzercize, walking the dog every day, eating as healthily as I can without getting fanatical about it. I do eat meat and chicken for protein, as my type II cancer isn't estrogen-dependent.

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inquirer | @inquirer | 18 hours ago
In reply to @cookercooker "@inquirer Wow! That's a huge list. Confusing at best, the scheduling at it's worst. Do you..." + (show)
Profile picture for cookercooker @cookercooker

@inquirer Wow! That's a huge list. Confusing at best, the scheduling at it's worst. Do you have any free time to eat real food? I am told to report any new drugs or supplements to my oncology team before taking them. They vet what will do no harm or interfere with the chemo. I'm on a target therapy called Enhertu, as a clinical study participant. As you can imagine, in keeping with protocol, they are very strict on what else goes into my body. D3, B12, magnesium and calcium are approved and recommended for my condition -- serous cell endometrial cancer HER@ 2+ stage 31C. Pretty bad one. Despite the meager supplementation, I am NED with normal ca markers 125, 15-5, 19-9. My blood panel finally a normal results after 1.5 years on the treatment. I also attribute the outcome to a few days of Jazzercize, walking the dog every day, eating as healthily as I can without getting fanatical about it. I do eat meat and chicken for protein, as my type II cancer isn't estrogen-dependent.

Jump to this post

@cookercooker Happy for you!

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jeanadair123 | @jeanadair123 | 18 hours ago
In reply to @1995victoria "@jeanadair123 I'm curious Why no speculum? Every gyno I've ever been to has used speculum, so..." + (show)
Profile picture for 1995victoria @1995victoria

@jeanadair123 I'm curious Why no speculum? Every gyno I've ever been to has used speculum, so wonder what the problem is and why they don't use?

Jump to this post

@1995victoria I asked them all they all said the same thing that it wasn’t necessary that they could feel anything with their hands.
I have since told many doctors who were shocked. Maybe it was because I was at that time cancer free 6 years but it was a recurrence. I’m so tired of being proactive.

REPLY
Profile picture for beebe
beebe | @beebe | 2 hours ago
In reply to @inquirer "These are my personal notes from research on supplements. Each is listed with the amount taken..." + (show)
Profile picture for inquirer @inquirer

These are my personal notes from research on supplements. Each is listed with the amount taken (for example "[8p2x Empty]" = 8 pills 2 times per day on an empty stomach) and a reminder to myself of why I was taking it. My goal was to slow the growth while waiting nearly 2 months for surgery. After surgery, I was diagnosed stage 1a.
Of course, none of these can be proven to have played a role.

LEADING UP TO SURGERY:

** [8p2x Empty] IP6 Gold w Inositol
"Reduce tumor growth and cancer cell proliferation"
** [1p1x Empty] EGCG (Life Ext decaf)
"Promote cancer cell death and inhibit growth"
* [10g2x Empty] Colostrum (Anovite)
"limited trials show anti-cancer effect"
** [1p2x] BioPerine, iherb
"To enhance absorption of supplements]
** [4p3x] GZFL "Proven in trials to reduce OC size"
** [1p1x] Turmeric (Now CurcuBrain Longvida)
"kill cancer cells and prevent growth"
** [1p4x Food] Tumeric (Now curcumin Meriva)
"kill cancer cells and prevent growth"
** [2p1x Food] Kirkland Tumeric
"kill cancer cells and prevent growth"
** [1p1x Food] Kirkland Fish Oil Omegas
"inhibit formation of new blood vessels in tumors"
** [1p1x Food] D3 Cstco Ntr Bnty
"Reduce cancer mortality"
** [1p6x] Flaxseed oil, Erewhon
"Promote cell death in late stage OC"
** [1p1x] Claritin
"Improve survival outcomes"
* Essiac Tea
"Has natural anti-cancer agents"
(Jeans Greens, 1-888-845-8327) drink 4oz 2x/day on chemo & 2oz 2x/day for life Note: (http://www.rem tvedies.net or Shoppers Drug Marts in Canada or Elaine Rylin in Roundup, MT 406-323-2201)
** Mineral Water naturally filtered and sourced to retain minerals
"Cancer survivor in Radical Remission" (Ex Mountain Valley & Mountain Falls)
* Ginger Tea
"kills OC cells" Fresh ginger root; Cut 25 1/2" cubes; Boil in 7 cups water; Stew for ~hour; Strain out cubes; ACV for taste; Store in fridge; drink 1 warm cup per day:

AFTER SURGERY:

** IP6 Gold w Inositol
** GZFL
** Essiac Tea
** Mineral Water naturally filtered and sourced to retain minerals
** Ginger Tea

Jump to this post

@inquirer
Do you have any tips on taking the IP6+Inositol? I tried it on an empty stomach as the bottle suggests and felt unpleasant gyrations in my stomach. Hoping there is a way I can take it and not harm its efficacy.

REPLY
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inquirer | @inquirer | 1 hour ago

@beebe My stomach doesn't get upset, so I used ChatGPT to see if it had recommendations and here's what I got:

If IP6 Gold with inositol upsets your stomach, there are a few approaches you can try:

Wait until your stomach has settled after a meal, then take it 2–3 hours later, when your stomach is relatively empty but less likely to be irritated.

Start with a lower dose, such as 1 capsule once or twice a day, then gradually increase to the recommended dose if you tolerate it well.

Take it with plenty of water.

A very small amount of food (avoid fat) may be a reasonable compromise. Options include a slice of plain toast, a few crackers, a small serving of applesauce, half a banana, a small portion of plain oatmeal (made with water). AVOID dairy products (milk, yogurt, cheese), since they're high in calcium. DO NOT take with meals or supplements high in iron, calcium, magnesium, zinc because IP6 binds with minerals.

Avoid taking it alongside other supplements or medications that can also irritate your stomach.

Because you're taking it to help reduce the risk of endometrial cancer recurrence, remember that evidence is still limited.

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