Craniofacial Hyperhidrosis - Any Information about treatment?

I've heard that Botox can help with similar.

@mcden yes, I have heard about that procedure. Have you asked your doctor about the procedure?

I find I only sweat on my head , it drips on my neck and drives me crazy I use headbands to soak it up. I dont know if its a left over from hormone treatment for breast cancer or psoriasis or whatever.

Thank you for your comment. This sweating drives me absolutely crazy too!

It may be worthwhile to consult a neurologist with a
center that treats autonomic disorders. The sweat is controlled by our nervous system. Specialized tests are
not available in doctors offices.

I would ask your doctor to be prescribed Ditropan (brand name). In Australia, I was prescribed it as Oxybutynin. I started with 2 tablets a day, then increased to 4. It has absolutely changed my life! Doing anything physical (like even just changing my bedsheets), or wearing jumpers or coats in winter I would end up a sweaty mess. My hair was always wet, make-up would slide off my face, so social situations were awful as people would notice and comment.

I’ve had this happen to me within the last year. Just a simple walk outside, even in cold temps, cause excessive sweating of my head and face primarily. It has even happened while sitting in an air conditioned room, doing a very gentle task.
I did get one provider to have a fairly long conversation about it, and she tried to find some cause. We ruled out all medication possibilities because I was treated with all of them for much longer than the sweating has been occurring.
She determined that it can just be a symptom of the vasculitis, but I’m actually on more treatment for that now than ever and most other symptoms are much improved- so I’m puzzled why the sweating would just now be an issue.
She also mentioned the possibility of it being autonomic in nature (I think with the vasculitis as the underlying problem), but I currently don’t have a neurologist so I am thinking of trying to get a referral. Of course, that will be a months long process.
I do plan to ask my PCP and rheumatologist about treating it with medication if it isn’t contraindicated to any of my current treatments.

I am so glad to see I’m not the only one with the issue. I was beginning to feel crazy.

I am so sorry you have experienced this. I have too, for the first time in my life. It showed up after being diagnosed eith GCA and taking high dose steroids for months
It started when I dropped down to 10 mg.
I understand your feeling that doctors blow this off.
I have a good rheumatologist, but he does not respond or offer any alternatives

dear @aspyres
Your post meant alot to me. It helps knowing you're not alone - or crazy.
I live in Canada, so the next comment might not work for you. I saw a dermatologist who recommended "Secure Topical Glycopyrrolate 2% pads"
from pharmacy.ca. He said disabling the sweat glands was dangerous. The pads are supposed to be used every day - and 30 pads cost over $70. I'm not rich! I decided to try. At the onset of a sweating attack I rubbed the pad over the top of my head, around the neck and forehead. I wish I was sure about its efficacy. Either the pad helped or it wasn't an actual attack in the first place.
I don't use them every day. It might be worth your while to try the pads for yourself. After what we've been through already, I can't dismiss it. The pads aren't an invasive medication at all. My GP ordered a cranial cat-scan. I haven't looked into neurologists. I'll ask my GP. Thanks for the tip. I pray
people like us can finally get some definitive answers about this debilitating,
depressing, and isolating condition. Thank you so much for posting.