Good days and bad

Posted by afeldman @afeldman, 4 days ago

Just got diagnosed with PMR.,prednisone 5 mg is doing well but i have days where I feel disabled in certain areas and normal the the next...i take gavapetin too and low-carb and low huar diet as im diabetic 2. Any similar experiences? Makes me anxious about returning to gym and normal activities if it causes continued ups and downs...

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

Ditto- I started on 15mg April 2025 and down to 9mg June 2026. However the pain started creeping back. This past week I found myself having to take 15mg to get relief. I thought it might be red-meat, or the occasional sweet treat or perhaps the light to moderate exercise caused my relapse. However, I firmly believe it is none of the above. PMR is going to raise its ugly head when it wants to. Period.

Moreover, if any of the factors below exacerbate PMR then narrowing down any specific cause or factor is a total crap-shoot for all concerned. (Well... at least for me)
# Age
#Weight
# Genetics
# General Health
# Maintenance medications taken
# Diet
# Habits (good and bad) lol

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Profile picture for rickman @rickman

Ditto- I started on 15mg April 2025 and down to 9mg June 2026. However the pain started creeping back. This past week I found myself having to take 15mg to get relief. I thought it might be red-meat, or the occasional sweet treat or perhaps the light to moderate exercise caused my relapse. However, I firmly believe it is none of the above. PMR is going to raise its ugly head when it wants to. Period.

Moreover, if any of the factors below exacerbate PMR then narrowing down any specific cause or factor is a total crap-shoot for all concerned. (Well... at least for me)
# Age
#Weight
# Genetics
# General Health
# Maintenance medications taken
# Diet
# Habits (good and bad) lol

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@rickman
You can probably add stress, both physical/illness and mental to your list.

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I'm 73, and I had good days and bad days before PMR. Even after being diagnosed with PMR, I have had good days and bad days that are probably not all attributable to PMR. The problem at our age is trying to distinguish between PMR symptoms and age related symptoms. Some of us also have a second adverse health condition. It's a crap shoot some days trying to figure out what I can and can't do, or what I should or shouldn't do.

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I was diagnosed with PMR about 16 months ago. I tapered down to 0 prednisone and it returned. I was changing doctors so the pain got really bad. During that time I said I had half days. For the first part of the day I couldn't do much. I would have to wait until med afternoon to wash my hair because I couldn't get my hands above my head. I really wanted to be done with prednisone but it was not to be, at least for now. Now I am back on 5mg and doing just fine. I find consistency of movement works best for me. Stretching and exercise each day work. I don't vary much. I will increase exercise very gradually. Sitting too much is my worst enemy.

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I used to Jody build up until January, although my symptoms were there already. Im on 5 mg prednisone and without it, I can barely move. Ill go for walk as i feel "normal" again but i super soar 2 days later. Not sure how to reintroduce any exercise without painful consequences.

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