← Return to Pain management and life expectancy stage 4 mestasized to bones

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Profile picture for beaquilter @beaquilter

I can share about my stubborn husband too.
He got diagnosed with stage 4 PC a year and a half ago, all over his bones and lungs etc too, but NOT in pain!
He's always worked out and lifted weights, so I actually think that's helped him and maybe masked pain, sometimes he feels "deep" muscle pain but I wonder if it's the spots where the cancer "tumors" are....
He's done monthly Firmagon injections, daily zytiga pills and prednisone and then chemo docetaxel last summer.
He really wanted Pluvicto from the start but Dr (and insurance) wouldn't approve until he had done all 3 things (ADTs and chemo)- now the chemo part is not required.
My husband (and I) are not the types to take much for pain either and it's kinda the reason why it was stage 4 from the beginning, his symptoms were just peeing frequently and ED but we had a lot of stress in our lives before that so dismissed it.
I get sad and mad at God now, why is this happening to us?? My husband was 55 and I was 47 and we have 4 children, 3 at home... How will I manage without him? At diagnosis they said 30% change of making it 5 years and that ADT etc would probably work 18 months or so until PSA starts going up again and he'd be castration resistant- then it would be time for Pluvicto, but even that only works well under half the cases?
It sucks and it sucks more that we get so depressed over it and can't enjoy life! -we try...

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Replies to "I can share about my stubborn husband too. He got diagnosed with stage 4 PC a..."

@beaquilter so sorry about your husband. I wish I had some good news for you. I completely understand your sadness and frustration. The not knowing is what hurts me the most. My husband says I am a control person. I feel like if I knew what I was dealing with I could handle it better. One thing I can tell you is if your husband can keep a positive attitude it does make a difference. We have had 4 good years since he was diagnosed. Thoughts and prayers for you.