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Is anyone else dealing with a neurogenic cough?
I have been a patient at Mayo for about two years. After meeting with a pulmonologist , allergist, gastroenterologist, and ENT specialists; and trying a variety of treatments, I am still coughing. I have had three laryngeal blocks. It helps somewhat, but I’m still coughing. The diagnosis is “neurogenic” cough. It’s not a simple cough. It’s a body wracking, continuous, harsh cough that can take away my ability to speak or have any volume to my voice. It severely limits my ability to socialize; the cough is irritating to other people and makes others very uncomfortable. They can even get angry listening to it, although I usually don’t have any control over it. Ricola cough drops with honey and herbs help. I I know this is a rare problem, but I would love to know if there are others out there and how they are faring.
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Hi everyone! It was both depressing and validating to read everyone’s comments. I first developed a cough three years ago after COVID, and ever since then, every time I’ve gotten sick it returns for many months, so I’m coughing for most of the year. This last time, I didn’t get sick and I developed the same cough. It’s been many months again and is especially disruptive because I’m a psychotherapist, and I spend most of my sessions unsuccessfully trying not to cough, since talking is a big trigger. Like many, I have tried lots of different treatments (and was finally diagnosed with neurogenic cough last year). The first time I took amitriptyline/ gabapentin, I responded pretty quickly. But this latest round it wasn’t touching it. We had tramadol from a surgery so I tried that and it worked magically. However, my doctor would only prescribe 20 pills and my cough came back. I have a referal to a laryngologist and speech therapy, but it takes forever to get in. And it doesn’t sound that hopeful based on everyone’s experiences. Anyway, I’m glad to be here and looking forward to sharing information. Hoping for all of us that additional treatment options become available.
Hi, I dont have neurogenic cough. But previously suffered from neurogenic pain. That I was told opioids and tramadol would not work. Pain was in the intensity of 9-10/10. I also used tramadol, ( it was in my home a leftover from another disease 5-6 years back. It worked out. Before that I was put on amytriptiline/ gabapentin with no help. Though most effective ( deffinitive) treatment was a nerve block, later done.