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Where to turn? Gastritis, Pancreatitis, IBS-C, diverticulitis, c-diff
I have been seeing the same gastroenterologist for 10 years. I have been diagnosed with Gastritis, Pancreatitis, IBS-c, I have had numerous other problems throughout the years, esophagus, diverticulitis, c-diff. I have been on every medication for Acid reflux pills, Linzess, Dicyclomine, Carofate, etc. All the diets, I'm no stranger to the lifestyle of digestive management. That being said, this year has been one of the worst I have ever been through. With Covid, everything was pushed back, and it was video visits. I had 2 edg's and colonoscopies since June. I was continuing to get worse and worse. Extreme nausea, vomiting, bloating, just very sick all the time. I still am. It's actually a lot worse.
So, my GI sends me to the surgeon. He orders tests. My esophagus tests were fine. But my gastric emptying test showed delay. They only told me that they would wait until all the tests were done. I got a message today that I have to deal with GI. No one called or explained that I now have Gastroparesis. I have been very upset with them because none of my medications I have been on for years are working for anything at all. I am dealing with all my other symptoms from all of my other conditions now too. My entire system is continuously acting up. I haven't been able to eat now at all until I absolutely have to. Even drinking water makes me sick. No one is contacting me about how to treat this. I haven't gotten any details about the results of the gastric emptying test from the 11th of December. I weighed 150.lbs on November 24th when I was in emergency and my scale reads 130 lbs. now. I'm being treated like a problem patient because I want answers and help. I don't live a life anymore. I am so sick all the time and I have no clue where to turn to. Can anyone give me some advice?
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They won't do the surgery until the C-diff gets cleared up, I am sure.
WOW! Unless your diverticulosis is an emergency situation (are your extensively bleeding for instance) , I would absolutely run from this situation. C-Diff is an infectious form of diarrhea and has a great impact on the colon. I just had this last fall and ER did an abdominal CT that showed significant inflammation and swelling throughout the entire colon including the rectum. Now imagine operating on that! My GI didn't even want to do a routine colonoscopy when we discussed it a couple months ago. How long have you been on the antibiotics used for this infection? Do you also have an immune deficiency?
I have been to multiple gastroenterologists. The common goal in my experience is to administer a colonoscopy. Beyond that, we enter the sphere of "try this, try that". There is little interest beyond that. This is a specialty of medicine that unfortunately offers nothing for the problem.
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1 Reaction@maryd
I am diagnosed with IBS-C. The probiotic I take is ALIGN recommended by my gastro DR.
I buy it at Costco. It is $11. off on a regular basis. Hope this helps.
well, not trying to one up or dump but born with Intussusception at 19 (be 65 soon) I was diagnosed with an ulcer went on Tagamet for 2 years
At 29 reflux - took Prilosec for 2 years/had to sleep sitting up for a couple years
I have a Epigastric hernia
I have a Hiatal hernia
I have Umbilical hernia that just refuses to be fixed
I have Barrett’s esophagus
I have EPI exocrine pancreatic Insufficient - have to take mega max dose of Creon
with each and every food intake (I am beyond max recommended dose per Dr)
I have pancreatitis flares
I have developed Type 2 diabetes - no complications yet
I have Lymphocytic colitis (not in remission) Daily use of Budesonide (max dosage)
I had my ascending colon removed 3/2008 including ilium and part of small intestine
I have acute diverticulosis
I have malabsorption of food (from epi) and inability to digest anything
I have chronic Small Intestinal Bacterial Overgrowth (SIBO)
I have a celiac sprue
I am highly lactose intolerant
About every 6 weeks I have an autoimmune
outbreak (like the reaction when I eat wheat products) that cause my finger tips to split open from the inside out, very painful.
Due to all this I can not tolerate antibiotics, they
destroy all the good bacteria in my system.
This does not include my lung issues.
I contracted pneumonia at 17 and fall into
bronchitis, then to pneumonia very, very quickly.
Advise? I would like to say something wise or witty, or even helpful.
All i found is each are different unique and you must pay attention to you and reactions from each and every item you consume, everything is suspect until it isn't.
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1 ReactionWhat are the best ways to renew our intestinal flora after antibiotic treatment ? Certain foods ? But be careful of probiotics- they are not for everyone, especially people in treatment for cancer.
If you are thinking of taking a probiotic, I HIGHLY recommend Visbiome. It has several different strains and I take 112.5 billion daily. If you can tokerate more, maybe you can very gradually increase it.