@meg17
Yeah, it becomes tedious at times, i.e. the cycle of being on during the day and off at night. Sometimes I want to delay taking medicine because I am sick of the cycle. Then I think of things that are worth living for and fight through the stiffness to start the day.

I am sorry to hear you have horrid symptoms, which i assume to be trouble swallowing and the like. I haven't had any experience with those kind of symptoms, but what does help is getting second and third opinions. When I know what is causing the issue and possible medication to address it, and it is not some mysterious serious symptom that will never go away, I find I can handle things better.