Does PMR go away permanently?

Posted by pawprintpeg @pawprintpeg, Jun 25 6:51am

I’m newly prednisone free and oh boy I am sore and miserable but I think I can do this. I sole-speak to myself constantly saying, “Come on body let’s reset”!! Now I’m reading it doesn’t go away but only goes into remission. 😭

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

I believe two things are in play for contracting PMR -- a genetic propensity and an environmental trigger that activates it.

As to why this only happens when we are older, I have no theory. But I suspect it has something to do with the body fighting inflammation on more fronts as life catches up with us.

So no, it doesn't go away, in my opinion. You still have the propensity for it. You can only control environmental factors that may be causing inflammation.

My first round of PMR was at 54. Took a couple years to get it under control. On top of that, went through a fusion of vertebrae in my neck (hazards of an Army career) and then quad tendon repair (hazards of taking prednisone that damages muscles and tendons).

But by 60 was feeling good. Worked on trails in the woods. Backpacked 400+ miles through Italy, ran (a slow) half marathon.

All good till I took up kickboxing exercises, which constantly inflamed existing bursitis in my shoulder. Of course, I didn't stop doing it and ignored signs of over-stressing my bodies ability to control inflammation.

Welcome back PMR at 63. At least this time I knew how to handle it. Restricted diet with increased protein. Regular low-stress exercise (mostly hiking, rucking and a little trail running as I feel better). Physical therapy. Tai chi. Acupuncture. Chiropractor. Everything I can think of to reduce inflammation in every part of my body.

Working hard to get off prednisone, which is its own kind of evil that sneaks up on you. Taking Kevzara injections to help with that, which seems to be working. Down 2.5mg and tapping every two weeks.

A long answer to your question, but cathartic to talk about the process and share with others.

Short answer is no, it never goes away. Which isn't to say you ever have to experience another flare, if you treat your body with that in mind from here on out.

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