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Does anyone have both peripheral neuropathy and venous insufficiency?

Posted by arflmi33 @arflmi33, Jan 22, 2025

As of now I have been diagnosed with both peripheral neuropathy and venous insufficiency, both in lower legs. Does anyone else have both of these? Can these two be related? Does this affect what treatment lotions (e.g. magnesium) can be used for the neuropathy? Is there any causal relationship of one to the other? Sorry for so many questions. This is kind of overwhelming at at the moment.

Interested in more discussions like this? Go to the Neuropathy Support Group.

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rollingf | @rollingf | Jun 25 1:28am
In reply to @lesx "I used to have trouble putting on my compression socks. I goggled a video that showed..." + (show)
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I used to have trouble putting on my compression socks. I goggled a video that showed me an easier way to put them on. I'll try and describe the method I use. I hold one of them with my thumbs on the inside with both hands and fold about 2/3's of the sock down to the outside. I place my foot in the half sock securely keeping the fold in the doubled position. After I get my foot in all the way I gradually pull up the half of the sock that was doubled over. I only need to use 10 - 15 units of compression. That makes it easier but I can still do it with higher compression. I can't walk well without compression socks and sneakers on but keep them on from the time I get up until the time I go to sleep. Core-spun by Thermafirm have been the most comfortable sock for me. You need to measure very carefully around your calf to get the correct size. Hope this helps.

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@lesx

THANK YOU! I tried the folding once long ago but I'll give it another try.

The Duluth socks I'm using are 15-20 units of compression graduated from zero at the foot up the lower leg. My sock comes up to just below my knee so I think I have the right size.

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John, Volunteer Mentor | @johnbishop | Jun 25 7:07am
In reply to @trapboat "I am finding (this) website to be too complicated. Just me. Have no help with this..." + (show)
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I am finding (this) website to be too complicated. Just me. Have no help with this problem

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Hello @trapboat. The Help Center should be able to explain any how to questions you might have for using Connect. Have you seen the Help Center (link at the top of each page)? Here's the direct link - https://connect.mayoclinic.org/help-center/.

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drs22 | @drs22 | Jun 25 9:03am
In reply to @bajjerfan "I would add that I have MACS Mild Autonomous Cortisol Secretion. Discovered about June, 2021. I..." + (show)
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I would add that I have MACS Mild Autonomous Cortisol Secretion. Discovered about June, 2021. I had benign growths on both adrenal glands and both were producing cortisol resulting in an excess. I had one adrenal gland removed in August, 2024. It still didn't result in adrenal insufficiency. By then the damage from excess cortisol had been done leaving me with foot drop from nerve damage due to being pre-diabetic. Actually I sort of self diagnosed diabetic neuropathy just from the type of chest pain on the left side. Hard to sort it all out when so many things go wrong at once. Had I known about the hypercortisolism way earlier it might have been a different story.

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@bajjerfan
Interesting. I have both venous insufficiency and non diabetic neuropathy. I also had Cushing's Disease, caused by a pituitary tumor which was removed 10 years ago (unfortunately, dealing with recurrence now). It took 5- 6 years to diagnose CD initially and this is the time period when both the VIS and PN both started. So while no doctor has said so, I believe both were brought on by symptoms of CD.

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bajjerfan | @bajjerfan | Jun 25 10:23am
In reply to @drs22 "@bajjerfan Interesting. I have both venous insufficiency and non diabetic neuropathy. I also had Cushing's Disease,..." + (show)
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@bajjerfan
Interesting. I have both venous insufficiency and non diabetic neuropathy. I also had Cushing's Disease, caused by a pituitary tumor which was removed 10 years ago (unfortunately, dealing with recurrence now). It took 5- 6 years to diagnose CD initially and this is the time period when both the VIS and PN both started. So while no doctor has said so, I believe both were brought on by symptoms of CD.

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@drs22

Before being referred to Mayo, an endocrinologist here said I had subclinical CD. After having one adrenal gland removed I still have excess cortisol production which my Mayo doc calls MACS Mild Autonomous Cortisol Secretion.

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jardinera25 | @jardinera25 | Jun 25 8:43pm
In reply to @rollingf "I am a Type 2 diabetic. The PN is what me diagnosed in 1991. Two years..." + (show)
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I am a Type 2 diabetic. The PN is what me diagnosed in 1991. Two years ago I had the first bone on my right big toe amputated. Both before and after the surgery, I have had several doctors tell me. I should wear compression socks. Since the surgery, I have also been getting foot cramps. I have been wearing Otho shoes and slippers with taylored inserts for them. I had bought a bunch of Compression socks a few years ago when I first complained about the cramps. I don't like wearing them because they are hard to put on and take off. Two weeks ago I had an appointment with a neurologist and he suggested I wear compression socks. I have started wearing them and since then the cramps have gone away. Several have mentioned vein problems. I use the Duluth Trading Company Compression socks and I have had no more cramps! I still don't like them because it takes me from ten to twenty minutes to put them on.

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@rollingf I am liking my new "aerolite" compression socks from Wellow for summer. The compression is 18/25 and that seems close enough for me to the 20/30 the doc said to get. They have lots of toe room and are very soft.....a bit on the longer side than my short legs need, but I adjust. All socks seem expensive, and these run around $30.

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jjfremont | @jjfremont | 7 hours ago

Hi folks, I'm new here, just joined this morning. I found this chat in a google search. So I received dual-peripheral neuropathy/venous insufficiency Dx recently though I have struggled with it for over a decade, and longer (childhood growing pains in my legs never went away). The first real "incident" was a 3 mile walk I took to the beach. I could barely stand the pain was so bad. I called a friend to pick me up and drive me home. At the time, doctors focused on other issues (B12 (lifelong deficiency; Dx age 23; treatment only began age 41), cavernomas (Dx age 45), mental health (PTSD; anxiety). So I have lost jobs because I cannot stand still for long and sitting is problematic if I'm not constantly moving, stretching, applying resistance to my legs and perfectly ergonomic). What a cluster! I am an active sort of person so I'm just making sense of all of this. Going through tests now, if I can get the folks at the EMG office to ever call me back.

What do I do now? What are the next steps?

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John, Volunteer Mentor | @johnbishop | 6 hours ago
In reply to @jjfremont "Hi folks, I'm new here, just joined this morning. I found this chat in a google..." + (show)
Profile picture for jjfremont @jjfremont

Hi folks, I'm new here, just joined this morning. I found this chat in a google search. So I received dual-peripheral neuropathy/venous insufficiency Dx recently though I have struggled with it for over a decade, and longer (childhood growing pains in my legs never went away). The first real "incident" was a 3 mile walk I took to the beach. I could barely stand the pain was so bad. I called a friend to pick me up and drive me home. At the time, doctors focused on other issues (B12 (lifelong deficiency; Dx age 23; treatment only began age 41), cavernomas (Dx age 45), mental health (PTSD; anxiety). So I have lost jobs because I cannot stand still for long and sitting is problematic if I'm not constantly moving, stretching, applying resistance to my legs and perfectly ergonomic). What a cluster! I am an active sort of person so I'm just making sense of all of this. Going through tests now, if I can get the folks at the EMG office to ever call me back.

What do I do now? What are the next steps?

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Welcome @jjfremont, We are happy that you found Connect! Probably the best thing you can do now is keep learning as much as you can about your condition and what treatments are available that may provide some relief. Here are a couple of sites that provide more information on neuropathy and treatments:
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/therapies/
-- Neuropathy Resource: https://neuropathyresource.com/topics/treatments/

You mentioned you had a lifelong B12 deficiency. You might find this related discussion helpful also:
-- Trying to find relief: https://connect.mayoclinic.org/discussion/trying-to-find-relief/

Are you currently being treated for B12 deficiency?

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jum13 | @jum13 | 5 hours ago
In reply to @jjfremont "Hi folks, I'm new here, just joined this morning. I found this chat in a google..." + (show)
Profile picture for jjfremont @jjfremont

Hi folks, I'm new here, just joined this morning. I found this chat in a google search. So I received dual-peripheral neuropathy/venous insufficiency Dx recently though I have struggled with it for over a decade, and longer (childhood growing pains in my legs never went away). The first real "incident" was a 3 mile walk I took to the beach. I could barely stand the pain was so bad. I called a friend to pick me up and drive me home. At the time, doctors focused on other issues (B12 (lifelong deficiency; Dx age 23; treatment only began age 41), cavernomas (Dx age 45), mental health (PTSD; anxiety). So I have lost jobs because I cannot stand still for long and sitting is problematic if I'm not constantly moving, stretching, applying resistance to my legs and perfectly ergonomic). What a cluster! I am an active sort of person so I'm just making sense of all of this. Going through tests now, if I can get the folks at the EMG office to ever call me back.

What do I do now? What are the next steps?

Jump to this post

@jjfremont I have all the things you mentioned including cavernomas . I had a similar experience yesterday, walked a mile and needed a ride home. I have been very active, like 20000 steps per day and lately I feel like a person who is just starting to exercise after being inactive for 5 years. I too have no clue what to do next, doctor suggested an mri of lower spine.

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amota | @amota | 4 hours ago
In reply to @colleenyoung "@jum13, I moved your question and the helpful comments you received into this relevant discussion: -..." + (show)
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@jum13, I moved your question and the helpful comments you received into this relevant discussion:
- - Doe anyone have both peripheral neuropathy and venous insufficiency?: https://connect.mayoclinic.org/discussion/doe-anyone-have-both-peripheral-neuropathy-and-venous-insufficiency/

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@colleenyoungI do have vascular deficiency pluss nerve damage for a year now. I don't feel any pain but my right foot is dropped. My balance is miserably bad. You may know more than I know. I am just learning how to deal with this issue.

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