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Hi folks, I'm new here, just joined this morning. I found this chat in a google search. So I received dual-peripheral neuropathy/venous insufficiency Dx recently though I have struggled with it for over a decade, and longer (childhood growing pains in my legs never went away). The first real "incident" was a 3 mile walk I took to the beach. I could barely stand the pain was so bad. I called a friend to pick me up and drive me home. At the time, doctors focused on other issues (B12 (lifelong deficiency; Dx age 23; treatment only began age 41), cavernomas (Dx age 45), mental health (PTSD; anxiety). So I have lost jobs because I cannot stand still for long and sitting is problematic if I'm not constantly moving, stretching, applying resistance to my legs and perfectly ergonomic). What a cluster! I am an active sort of person so I'm just making sense of all of this. Going through tests now, if I can get the folks at the EMG office to ever call me back.

What do I do now? What are the next steps?

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Replies to "Hi folks, I'm new here, just joined this morning. I found this chat in a google..."

Welcome @jjfremont, We are happy that you found Connect! Probably the best thing you can do now is keep learning as much as you can about your condition and what treatments are available that may provide some relief. Here are a couple of sites that provide more information on neuropathy and treatments:
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/therapies/
-- Neuropathy Resource: https://neuropathyresource.com/topics/treatments/

You mentioned you had a lifelong B12 deficiency. You might find this related discussion helpful also:
-- Trying to find relief: https://connect.mayoclinic.org/discussion/trying-to-find-relief/

Are you currently being treated for B12 deficiency?

@jjfremont I have all the things you mentioned including cavernomas . I had a similar experience yesterday, walked a mile and needed a ride home. I have been very active, like 20000 steps per day and lately I feel like a person who is just starting to exercise after being inactive for 5 years. I too have no clue what to do next, doctor suggested an mri of lower spine.