Neuropathy following Robotic Prostatectomy

Posted by jchandler64 @jchandler64, Oct 9, 2025

I’m 64. Had my robotic prostatectomy in November of 24. Several months after the surgery I developed severe pain in my penis. Mainly in the tip. It’s like someone is trying to insert an ice pick. Unbearable at times. My surgeon kinda blew it off as part of the healing process. He kept checking for a UTI, which, always came back negative. This went on for 5 or 6 months. Finally a colleague of my wife’s suggested that it may be neuropathy. My surgeon has never had a patient with my issue. My radiology oncologist has never had a patient with my issue. My PCP has never had a patient with my issue. My pain management doctor has never had a patient with my issue. My 12 or so friends and colleagues that I know that have gone through the journey of prostate cancer and robotic prostatectomy have never experienced what I’m still experiencing. I am desperate to connect with someone that has or is experiencing what I’m experiencing. Anyone out there that has?? Anyone?

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@bfg1 Thank you! I saw and read it but have been busy. I saw your info at the bottom. Maybe we can chat later?

Joe from Florida

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@jchandler64 certainly, and we can do a phone call if you want. Text me first to arrange a time to talk.

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