Neuropathy following Robotic Prostatectomy

Posted by jchandler64 @jchandler64, 1 day ago

I’m 64. Had my robotic prostatectomy in November of 24. Several months after the surgery I developed severe pain in my penis. Mainly in the tip. It’s like someone is trying to insert an ice pick. Unbearable at times. My surgeon kinda blew it off as part of the healing process. He kept checking for a UTI, which, always came back negative. This went on for 5 or 6 months. Finally a colleague of my wife’s suggested that it may be neuropathy. My surgeon has never had a patient with my issue. My radiology oncologist has never had a patient with my issue. My PCP has never had a patient with my issue. My pain management doctor has never had a patient with my issue. My 12 or so friends and colleagues that I know that have gone through the journey of prostate cancer and robotic prostatectomy have never experienced what I’m still experiencing. I am desperate to connect with someone that has or is experiencing what I’m experiencing. Anyone out there that has?? Anyone?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

jchandler64 | @jchandler64 | 19 hours ago

In reply to @bfg1 "@jchandler64 Wishing you well and if you want to I would like to hear any significant..." + (show)

@bfg1 Will do. Thanks and you as well!

bonanzaman | @bonanzaman | 5 hours ago

I've got it in my feet and vitamin B-complex and Taurine seemed to help. Went to the doctors and he looked annoyed when I told him what seemed to help. He offered no help.
Whenever it flares up, out comes the vitamin B complex and Taurine and it pretty much stops it. Maybe give it a try for a couple of days and see if things change. Hope things get better for you.
Dave