Share your test results (if you'd like)

Posted by northoftheborder @northoftheborder, May 28, 2024

I thought it might be helpful to have a thread dedicated to sharing routine test results, good or not-so-good. My intention is just to provide a place for sharing, support, and encouragement, not for debating tests and treatments

I'll start. I've been at stage 4b oligometastatic for over 2½ years, and last Friday I did my routine 12-week bloodwork. My PSA remains below 0.01 (undetectable), Orgovyx and Erleada are holding my testosterone at 0.2, and the other tests are in normal ranges, except for those related to iron, which are slightly low.

Overall, it was a banner day! 🎊 I always treat myself to a masala chai at the little Indian café across the street while I'm waiting for my results to pop.

Do you have any recent test results you'd like to share?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Profile picture for denis76 @denis76

I'm still worthy (THOR, Avengers)

PSA - 0.01 (ERLEADA + ADT)

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@denis76 Congrats! ADT + Erleada is a great combo! It's been almost 5 years for me. My PSA dropped from 68 to 20 to 5 in a few weeks, then has been undetectable (< 0.01) since.

Erleada wasn't even in the Ontario formulary yet in 2021, so the cancer centre had to send a special request to the Ministry of Health (who approved it almost immediately).

With my sudden mCSPC diagnosis that year, I literally just *barely* squeaked in under the wire in the transition from old, sequential therapy (where my life expectancy would have been 3–5 years) to new doublet therapy (where my life expectancy is yet to be determined, but definitely much longer and possibly indefinite).

Now, doublet therapy is standard of care for mCSPC at all the major cancer centres, but it wasn't so in 2021. It the undetected cancer had spread a couple of years earlier, I might not be here to write this post.

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Just got my 6-month PSA report back… <0.04 - my new favorite number. Follow-up with care team next week.

Good for another 90 days!

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Profile picture for denis76 @denis76

I'm still worthy (THOR, Avengers)

PSA - 0.01 (ERLEADA + ADT)

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@denis76
WOW 👯‍♀️🍀 : ))) ! Those are SUPER FANTASTIC results !!!! CONGRATS !!!

CHEERS to 50 more years of great results 🍹 : )))) !!!!!

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Profile picture for denis76 @denis76

I'm still worthy (THOR, Avengers)

PSA - 0.01 (ERLEADA + ADT)

Jump to this post

@denis76

I sent you "congrats card" but it is under "review" - it will appear by tonight but I want to congratulate you once more in between <3 !!!
Those are super news and results !!!
Absolutely "worthy" my friend - PER ASPERA AD ASTRA we go !!!

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Profile picture for TurtBean @turtbean

Just got my 6-month PSA report back… <0.04 - my new favorite number. Follow-up with care team next week.

Good for another 90 days!

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@turtbean

YEAYYYYYY !!! Wonderful news !!! 🥰
I am so happy for you and wishing you forever undetectable results !!! : ))))) 👍

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Just got my 24 month post RARP results. PSA is still undetectable so I'm a happy (and grateful) camper. Next test in 6 months.

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Profile picture for northoftheborder @northoftheborder

@denis76 Congrats! ADT + Erleada is a great combo! It's been almost 5 years for me. My PSA dropped from 68 to 20 to 5 in a few weeks, then has been undetectable (< 0.01) since.

Erleada wasn't even in the Ontario formulary yet in 2021, so the cancer centre had to send a special request to the Ministry of Health (who approved it almost immediately).

With my sudden mCSPC diagnosis that year, I literally just *barely* squeaked in under the wire in the transition from old, sequential therapy (where my life expectancy would have been 3–5 years) to new doublet therapy (where my life expectancy is yet to be determined, but definitely much longer and possibly indefinite).

Now, doublet therapy is standard of care for mCSPC at all the major cancer centres, but it wasn't so in 2021. It the undetected cancer had spread a couple of years earlier, I might not be here to write this post.

Jump to this post

@northoftheborder

But for me PSA dropped (after apply Erleada) was very long - 17 months.

At first, my testosterone levels were fluctuating up and down. They've stabilized over the last six months, knock on wood.

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Profile picture for surftohealth88 @surftohealth88

@denis76

I sent you "congrats card" but it is under "review" - it will appear by tonight but I want to congratulate you once more in between <3 !!!
Those are super news and results !!!
Absolutely "worthy" my friend - PER ASPERA AD ASTRA we go !!!

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@surftohealth88

Thank you, Bro, thank you very much! I shake your hand and good luck in the fight!

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Profile picture for denis76 @denis76

@northoftheborder

But for me PSA dropped (after apply Erleada) was very long - 17 months.

At first, my testosterone levels were fluctuating up and down. They've stabilized over the last six months, knock on wood.

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@denis76 I'm sorry it took so long, but it's great that you got there.

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