DNR or Full Code for Resuscitation?

Posted by grrranny @grrranny, Jun 26 7:31pm

How do you make the decision? Those of you who made the decision to have Full Code resuscitation (and have had it) instead of Do Not Resuscitate -- what factors did you consider, how old are you, and do you feel you made the right choice?
I have read that CPR is very hard on the body -- from breaking ribs to breaking bones. And there's also the possibility of being put on a ventilator -- which is sometimes deadly. What if an elderly person is already very frail, with multiple incurable chronic problems?

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Profile picture for grrranny @grrranny

Looks like it could a problem either way:

With DNR: it could be ignored, even after going to all the trouble of posting it everywhere.
(So why bother?)

With CPR, etc: a person could be a lot worse-off afterward, which could be horrible -- very painful. (And for who-knows how many years.)

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@grrranny
In California, my Kaiser insurance company is more than happy to give you a DNR to complete . It is a very personal decision. If you don't understand something, you need to talk to somebody you trust to explain it to you. It seems overwhelming, but it's not, you just have to get in, read it, and answer the questions. I'm 75 and haven't done mine yet. At this time, I want full code and want to be resuscitated. There are some things in the DNR that I probably won't want done to me, and those issues are also in the DNR.

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Profile picture for linh @linh

My humble view is that DNR decision(s) should be made based on the specific healthcare settings. How is the healthcare setting staffed? That is, what is the ratio of patients to nurses in day-to-day practice (on all shifts and days of the week)? Is there some flu or worse filling up the medical setting with patients? Once you sign a DNR form when push comes to shove, my observation (based on from where I once worked) is you will be sent out of the intensive care floor door first should they need more beds in practice. They should be transferring patients to their partnering hospital when they are short of critical care beds, but I didn't see that happen. Your 1-to-2-person patient ratio is now higher on another floor (If you want less attention great!). The ideal is to avoid CPR in the first place and having an attentive nurse keeping close tabs over you helps keep the need for CPR at bay. If you live near a great medical center perhaps it is safer to specify your specific wishes, otherwise beware! Note that I have been assuming DNR patients still are rating intensive care beds.

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@linh I don’t understand. Why would a DNR person be in an intensive care ward to begin with?

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Profile picture for grannytrucker @grannytrucker

@grrranny
In California, my Kaiser insurance company is more than happy to give you a DNR to complete . It is a very personal decision. If you don't understand something, you need to talk to somebody you trust to explain it to you. It seems overwhelming, but it's not, you just have to get in, read it, and answer the questions. I'm 75 and haven't done mine yet. At this time, I want full code and want to be resuscitated. There are some things in the DNR that I probably won't want done to me, and those issues are also in the DNR.

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@grrranny
I have a horror story about what happened to my Mother-In-Law. She had her daughter in charge of her care. She got so she couldn’t live by herself anymore. Not one of the kids took her in. My husband and I did. They informed us that we should call hospice. Immediately we knew that wasn’t needed. I worked with her to get her strength back. She had gotten so that she couldn’t even get out of a chair because they bought her one of those electric recliners that lifted you out of the chair. In general, she was very weak, but she recovered her strength quickly. They had done a lot of other stupid things. One of which, she had dental work that was extremely difficult to daily remove and replace. It should have been fixed! She thrived at our house. We had one problem that made it impossible for us, two full-time truck drivers, to care for her. I spent the entire time trying to remedy the situation.

She would get up at night to use the bathroom. When she did, she sometimes fell, and you would have to take her to emergency to make sure she didn’t hurt herself. One of the many things she did was when I bought an alarm that attached to her shirt and when she got up, the alarm would go off. She would take her shirt off and get up without setting off the alarm. Fast forward and regrettably we gave notice and she went to her other son’s house. Wasn’t there long and he put her in a nursing home. While she was there, we believe one of the attendants broke her jaw attempting to take out the dental device. Kaiser wrapped gauze around her head and sent her back to the nursing home. She had a DNR in place and one of the boxes that someone checked was that they could withdraw food and liquids. By the time we were told, it was too late. When she finally passed, she looked like a dried-up piece of leather.

All I can say is choose wisely who you decide to oversee making decisions. Like someone said, if you are frail, that could be a reason not to have CPR. Or living with certain attachments like a feeding tube. My dad had a feeding tube at home, and we used a lift to take him out to the living room daily for the last year of his life. He and the family enjoyed every minute of it. He had an amazing personality and sense of humor. We kept him at home to spend time with him and because he would not be able to defend himself in a nursing home or hospital. We were with him 24 hours a day while he had was there. It was hard on us to be there, and we brought him home and did everything that would have been done at the facilities. Not everyone can do that, but we were blessed with that ability. My dad always wanted full code, and he didn’t want to fill out a DNR. We decided that the only thing we were against was CPR. As frail as he was, it would have broken every one of his ribs.

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I heard someone say, 'Stop buying things that make your life easier.' This quote came to mind when I read about the lift chair. I really think life is meant to be hard. You have to struggle, to strive. It is the only way to stay strong while slowly slipping away a day at a time.

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How did this get from a DNR discussion to a debate on trusts?

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Profile picture for kjoed53 @kjoed53

How did this get from a DNR discussion to a debate on trusts?

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@kjoed53

I wondered too.

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Dear Grrranny-

A few years ago the multi-generational community where I live decided to install a CPR device in the community house and train everyone in basic CPR. The CPR machine gives instructions, so you don't need to memorize the techniques.
I agreed that this was a good thing for the community, but after it was done, and following up on research about the poor chances (for me, at 76) of healthy recovery from CPR, I talked with our community nurse and gave her a DNR notice from my doctor.

At the time I was clear that it was the most reasonable decision, but must admit I felt a bit of quivering at the thought that I refusing a potential treatment that might have a small chance of extending my life.

Since then, recently, one of my dearest friends has been diagnosed with advanced cancer with no real treatment options. Seeing her struggle against the brutally advancing pain as she tries to complete a few tasks to bring her life to a clear end is hard to witness. It's not certain how long this will go on. It depends on where the cancer attacks next.

So, my friend is helping me feel at peace with my decision about CPR. My end-of-life papers and preparations are done. I am generally healthy and active. The thought that I may some day have a heart attack and die quickly is a peaceful thought.
That could be a lucky way to go.
And I think of this with gratitude and love for my friend.

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Profile picture for edsutton @edsutton

Dear Grrranny-

A few years ago the multi-generational community where I live decided to install a CPR device in the community house and train everyone in basic CPR. The CPR machine gives instructions, so you don't need to memorize the techniques.
I agreed that this was a good thing for the community, but after it was done, and following up on research about the poor chances (for me, at 76) of healthy recovery from CPR, I talked with our community nurse and gave her a DNR notice from my doctor.

At the time I was clear that it was the most reasonable decision, but must admit I felt a bit of quivering at the thought that I refusing a potential treatment that might have a small chance of extending my life.

Since then, recently, one of my dearest friends has been diagnosed with advanced cancer with no real treatment options. Seeing her struggle against the brutally advancing pain as she tries to complete a few tasks to bring her life to a clear end is hard to witness. It's not certain how long this will go on. It depends on where the cancer attacks next.

So, my friend is helping me feel at peace with my decision about CPR. My end-of-life papers and preparations are done. I am generally healthy and active. The thought that I may some day have a heart attack and die quickly is a peaceful thought.
That could be a lucky way to go.
And I think of this with gratitude and love for my friend.

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@edsutton I agree Ed.
When you walk through a cemetery and notice the ages of many of those who are there and realize that reaching even age 70 is remarkable...certain decisions about DNR/DNI etc. can actually be a realistic, intelligent and best decision due to several circumstances.
We who have reached 70 and beyond are very fortunate with having reached that age yet we also have to think about all you have posted and mentioned in being prepared and knowing a good, wise and hopefully best decision and outcome in an inescapable life event.
Have a great day. Wishing your friend a great day also knowing you care.
Barbara

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Profile picture for gloaming @gloaming

A useful metric for EOLC - End of Life Care:

1. Has it been good, even great? If yes, then you've had the biscuit...or the bon-bon....whatever you call your 'goodie'. There's not much left to miss or to hope for.
2. Is it still good, even great? If yes, then why not continue to wring what you can out of Life? But, if it isn't great, are you likely to see improvement or any gains......again? Probably not, not if you have comorbidities, a lot of pain that needs meds, greatly reduced mobility, need help with hygiene, and are heavily dependent on other's efforts to get you through even a single day. If you're really not having much or any fun, it might be time to move on. So, what would be the point of resuscitation? Would you like to awaken after heroics, but in much greater pain, and with even fewer prospects and optimism?
3. Do you have fear over dying, maybe just general anxiety? Would it help to talk about this with a therapist to get you over some stumbling blocks? Is it one thing or several? What would you need in place in order to feel a lot better about nature taking its course when the time is right, and you having a DNR in place, in plain view, and known by all those who are likely to continue to provide you with some kind of care routinely?
4. Are your affairs in good order? You have a current will that you don't want to change? Do you have an executor to conclude your estate legally? Is there anything else that you keep bringing up mentally, something that might rob you of rest, of peace, or of sleep? Maybe you need to discuss this with a trusted friend who can be counted on to look after your best interests or to help you to parse out the problem(s) on your own terms. Once they are put to rest, you can be put to rest.
5. Don't overlook that long overdue apology. We all have things that eat at our conscience. We're all highly adept at suppressing them....until we near The End. Then they loom and occupy our thoughts. If there is still time, if you know you can reach the offended, now is a great time to unburden yourself....and them.
6. As a Christian, you know what I would raise here, but only with those whom I know are of the Faith. If you are secure in your own position on religiosity, faith, or any of the other philosophies, then at least that much can be tucked-in for the last time.
7. Lastly, if you deal with these forthrightly, maturely, with determination and resolve, you will live out your last days in peace and little else but the loved ones in your life will matter thereafter.

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@gloaming This is a very thought provoking post. I agree with most of your thoughts and my life is still good. Have a great day and thanks for the excellent advice.

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Profile picture for gloaming @gloaming

I heard someone say, 'Stop buying things that make your life easier.' This quote came to mind when I read about the lift chair. I really think life is meant to be hard. You have to struggle, to strive. It is the only way to stay strong while slowly slipping away a day at a time.

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@gloaming
For sure. especially when there are things even old people can do with gentle exercising to strengthen their bodies. When my mother-in-law came to live with us, within a week, she was getting in and out of all of our chairs without any help. Sadly, the only thing we couldn't fix was her getting up in the middle of the night to use the restroom and falling. I slept on the floor in front of her bed, kept records and measured her intake/output and made adjustments. Surely it would have worked for some people. but not her. She was quite the character! Caring for our elderly family is so rewarding and such a blessing.

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