Octreotide Injections - Skipping One or More?

Posted by markmark007 @markmark007, Nov 17, 2023

Following completion of PRRT treatment, my wife has been receiving monthly octreotide (Sandostatin LAR) injections.
She will be out - of -town when the next injection is to be done.
Question:
Has anyone skipped an injection (s)?
If so, did this result in negative impacts?
All comments will be appreciated.
Thanks,
Mark

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Profile picture for nannybb @nannybb

@markmark007 Hey Mark,
I was on the self administered daily shots for about a month and a half before my doctor switched me to the IM once a month version. I was supposed to get another shot last week, but asked to be taken off, at least until they confirmed for sure I have DIPNECH.
To answer your question, I am already experiencing the return of flushing, occasional coughing and annoying phlegm in the back of my throat. I don't know if your wife had any of those before taking the shot, but I did. If you or your wife are worried about skipping, you might ask your doctor about the daily injections. Being self administered, you can still travel and still get a version of the med. I thought they were beneficial. Hope that helps in some way. If your doctor agrees, there are cases you can buy to keep the vials cold. I bought mine on Amazon. Blessings 💕

Jump to this post

"There are cases you can buy to keep the vials cold. I bought mine on Amazon.a". Thank You for this helpful information. Is there a description or number I can use to order one. I use Ochtreatide rescue shots. The effectiveness lasts about two to four hours. Will be increasing the Lanreotide long last shots from every twenty eight days to twenty one..
Thank You for the added information .. and for your example of finding your way through the NET conundrum.

REPLY
Profile picture for maeve115 @maeve115

"There are cases you can buy to keep the vials cold. I bought mine on Amazon.a". Thank You for this helpful information. Is there a description or number I can use to order one. I use Ochtreatide rescue shots. The effectiveness lasts about two to four hours. Will be increasing the Lanreotide long last shots from every twenty eight days to twenty one..
Thank You for the added information .. and for your example of finding your way through the NET conundrum.

Jump to this post

@maeve115 Hi there! Yes there are several choices for vial cases on Amazon. I bought a Cruxer brand because it did not have extra things I did not need. The cases are usually used for people taking insulin. If you look up insulin supplies, you will find other cases you might like better, and the sharps boxes and alcohol pads are there as well. Hope that helps. 💕

REPLY
Profile picture for nannybb @nannybb

@maeve115 Hi there! Yes there are several choices for vial cases on Amazon. I bought a Cruxer brand because it did not have extra things I did not need. The cases are usually used for people taking insulin. If you look up insulin supplies, you will find other cases you might like better, and the sharps boxes and alcohol pads are there as well. Hope that helps. 💕

Jump to this post

@nannybb
Thank you. This information is really helpful..
Maeve

REPLY
Profile picture for maeve115 @maeve115

@nannybb
Thank you. This information is really helpful..
Maeve

Jump to this post

@maeve115 You are very welcome. Any more questions I can answer I'd be most happy to do so. Blessings💕

REPLY
Please sign in or register to post a reply.