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Well then,
It’s been a few since I pulled my head out of the sand.
Have been home two weeks after spending almost that at the amazing Mayo Clinic Rochester.
What a privilege it was to be seen and I now have confirmation on diagnosis.
Definitely not something you wanna spitball.
Biopsy came back and along with all tests at MC, I’m living with MCI, Lewy Body with Parkinsonism.
Started the LB med week ago and Parkinson’s med today.
I’m grateful, but still gathering myself with the absolute of it.
I’m staying busy, but finding myself getting tired easier and needing breaks during the day.
Working hard at giving myself permission to process my emotions.
I talk about it a lot.
Ashley has had a generous amount of wisdom since I’ve been on here, I’m working at applying some of it.
Keeping it steady for now.
Craig

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Replies to "Well then, It’s been a few since I pulled my head out of the sand. Have..."

@craigbyrom
Good to hear from you again!
Sorry to hear the news. How many of the skin biopsies came back positive? I had one on my neck come back positive.
Attitude means a lot right now, concentrate on what you have, not what may happen.
Easier said than done, for sure, but it will help.
I decided to retire sept 8th. I was going to wait another year, but things are becoming slowly more difficult. So I decided to go early, while I can still enjoy myself.
My doctor put me on Buspar for anxiety, really messed up my stomach. I'm glad you’re going to Mayo- no place better!
It’s the Fourth of July and I am foregoing my 8:00 bedtime, going to the city park and watch the fireworks, it has been many, many years when I watched them as a child, yet I still find them very exhilarating.😃
Keep the strength! Regards, Ashley