Considering Forteo

Posted by lisitabelle @lisitabelle, Feb 22 7:54am

Hello everyone,

My doctor would like me to start Forteo. I am 62 and have what is considered severe osteoporosis. It has been stable for many years and I have been treating it holistically (fit and exercise) and with Evista. Due to my age and underlying Panhypopituitarism (needing steroids for most my life) , my doctor is very concerned about my bones.

Has anybody used Forteo and how has that been? I am concerned about side effects and he mentioned that the black box warning of osteocarcinoma has been removed, but I still worry about that as well. It’s one of those things that I need to consider the benefits versus the negative side effects.

Thank you all so much for any information you may have.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

kfhoz | @kfhoz | 9 hours ago

In reply to @zhaner "My doc wants me on Forteo but insurance wants a bisphosphonate first, which I know is..." + (show)

@zhaner Do you have any evidence of low/no trauma fractures? That is how a friend got teriparatide (brand name Forteo) paid for by insurance. Even if I have to self-pay, my plan once I go on drugs is to do teriparatide => romosozumab (Evenity) => bisphosphonate to maintain. This plan is based on evidence from Dr. Michael Lewiecki and others.

Sounds like you already know about sequencing OP drugs, but here are 2 links to doctor presentations in case anyone else reading this thread wants:

Treat-to-target for osteoporosis (very technical talk, aimed at professionals)