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Pancreatic Disorders Group: Introduce yourself and connect with others
Pancreatic Disorders | Last Active: Jun 30 11:20am | Replies (111)Comment receiving replies
70 year old male diagnosis with autoimmune pancreatitis type 2 diagnosed in February 2023 at MSK in New York. Secondly diagnosed with pernicious anemia in February 2026. I was on the table to have a WIPPLE procedure when a very skilled surgeon had my pancreas in his hand and determined it wasn’t pancreatic cancer. I Had my gallbladder removed than responded well to steroids post surgery. Now I’m juggling the long term effects of prednisone use, DM, and possible pancreas scarring. My blood sugar and my digestion improves with 5mg of prednisone daily but I have acute episodes where more steroid use is needed I have an excellent GI specialist but it’s hard to find a endocrinologist who has experience with these diagnosis’s. I’d like to keep my health span as close to my lifespan as possible. So what does a person do? There’s not many of us with AIP TYPE 2 . Larry
Replies to "70 year old male diagnosis with autoimmune pancreatitis type 2 diagnosed in February 2023 at MSK..."
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Hi @lrpallcorp - welcome to Mayo Clinic Connect. That is a relief that you don't have pancreatic cancer. But dealing with long-term effects of prednisone use, DM and possible pancreas scarring is a lot.
I wanted to suggest you might check out this discussion in the Connect Autoimmune Diseases support group:
- Autoimmune Pancreatitis https://connect.mayoclinic.org/discussion/autoimmune-pancreatitis-1/
This discussion has been ongoing for some years, and I think that fellow members there would understand some of what you are experiencing.
You might also like to take a look at the posts and potentially post yourself in this discussion on pernicious anemia, another discussion that has continued throughout several years:
- Pernicious anemia https://connect.mayoclinic.org/discussion/pernicious-anemia-1/
Sounds like the prednisone has been helpful to you, but you are concerned about long-term side effects? Have you experienced any side effects from the prednisone use thus far? Also, since there are so many acronyms in medicine, confirming when you talked about DM that you meant diabetes mellitus?