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Predisone
I started having back pain and night sweats after 3 weeks of predisone, the pain migrated from lower spine to thoracic, cervical, scapular and sternum. Stayed on prednisone for 3 months, now on Mycophenolate. Those symptoms continue and also have abdominal, pelvic, thigh and knee swelling. I have not been given a reason for these symptoms after seeing numerous doctors. Anyone experience anything similar?
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@jcl75
Gotta love insurance! They have no idea what the patient goes through. Good luck, I hope you stay in remission.
🤗
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1 Reaction@tova Thank you. Just watching out for those of you who don’t know the dangers of prednisone
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1 ReactionHello @tova,
I'd like to subtly remind of the Community Guidelines. In particular,
1. Share your story, not medical advice.
- Share your own experiences. But do not tell others what they should do.
- Experience does not replace professional medical advice. It does not replace a diagnosis. It does not replace treatment. See the full Disclaimer.
- Do not ignore professional medical advice. Do not delay seeking medical advice.
Stopping medications abruptly can have side effects that sometimes can be dangerous. It is always best to discuss with your providers if you are experiencing any side effects or if you'd like to seek an alternative treatment or stop a treatment so that a proper tapering can be safely decided on with your provider.
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5 Reactions@jcl75 Glad things are improving for you! I too have GCA/PMR and am taking vitamins to cover the damage Prednisone can do as it depletes many vitamins and may cause hair lose. I am trying Nutranize as this pharmacist has had complications and has made vitamins to combat it. She's a pharmacist. Look up Dr. Megan online- many videos. You can get a coupon or special deal on Amazon as these are expensive but worth it. Good luck !
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1 Reaction@momac59 I've been receiving treatment for GCA and PMR for 2 years. I also started at 60 mg of prednisone per day, and I've been taking weekly Actemra injections for most of the 2 years. I finished prednisone 11 months ago, but I'm still taking the Actemra injections. I think my rheumatologist will switch me to every other week for the Actemra injections soon.
You should be aware that it can take up to 3 months for the Actemra to take full effect. Also, it doesn't work completely for everyone, but even if it doesn't work completely, it should allow you to use a lower dose of prednisone or another drug.
The Actemra has worked very well for me. I haven't had any symptoms or flares since I started treatment, and I was fortunate to only have minor issues tapering off of prednisone.
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1 Reaction@tova Thank you, I wish I had known prior to treatment.
Deb
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2 Reactions@ebjj4health Me too!!
@istraz34
I tried to purchase Neutranize, but I couldn't purchase because seemingly it can't be shipped to NC. I. am waiting for a reply from the people at Neutranize.
Thank you for this information.
@jcl75
Hi JC
The product is spelled NUTRANIZE , , maybe that is the problem, Don't know what the other is.
Dr. Megan's videos are very helpful as well.
@istraz34
No, I got to the actual site. It seems when you select a state, all states are not included in the options. I could get it at Amazon though I can't be sure of it's authenticity.