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Could it be Fibromyalgia

Fibromyalgia | Last Active: 7 hours ago | Replies (31)

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Profile picture for jeannesf1 @jeannesf1

Hi. I’m hurting for you and actually hurting. It’s 5am and have slept for 1 hour. Both cause of insomnia and pain. My pain jumps around. Right now I have the interstitial cystitis pain bladder pain/urinary burning, 90% of the day but worse at night. Before that it was my back (chronic pain), before that hips, thighs and sides of thighs (painful to the touch and without touch constantly), which is a lot less then when first diagnosed. Yes the fatigue (I’m tired), makes me feel guilty no matter what I tell myself). When I was first diagnosed I had so much pain I couldn’t walk, open doors, shower ( felt like needles) and so much more. Doctors were baffled. They were thinking multiple sclerosis. I was diagnosed by a neurologist by process of elimination. If I wrote down all the illnesses, chronic issues I’ve had I could write a book. YET now I’m better. I’m not suggesting you may have fibromyalgia Everyone has different symtoms and levels of pain and different things work for different people. Heating pad, biofreeze, ibuprofen, chiropractor are my best friends, but only help sometimes. I’m taking LDN , which has helped (see information on this site about it) and that’s it. When I was diagnosed (over 14 years ago) was given amitriptiline worked but caused QT longation. So was given Cymbalta and gabapentin, ( up to 2000 mg daily) these meds work somewhat.
But if I had it to do over again I would not have taken them for so long. Got myself off them ( with doctors assistance but she is GP and now I know I should have not done it as rapidly as I was told I could) . Got off because of side effects, was doing better and wanted to take LDN instead. I’m still dealing with long term side effects it left behind after over a year being off. Trial and error. But there is relief. We are constantly trying and sharing new things on this site. It’s really helped me. Prayers for you. Love and peace.

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Replies to "Hi. I’m hurting for you and actually hurting. It’s 5am and have slept for 1 hour...."

@jeannesf1

thank you for replying, I appreciate your kindness. I bought a big bottle of Tylenol and started taking them to help with the pain and aches. I've been on Amitriptylene for years because i have insomnia. Right now i feel achy and tired, and i just want to feel better.

@jeannesf1 your story sounds a lot like mine. The biggest frustration is the way the pain seems to move around. I’m on Suboxone, switched from Hydromorphone and that switch has helped. Also went from 60-30 mg of Cymbalta. Would like to get off but have been through lots of stress with my brother dying so am in a very bad flare. I’m now trying Lyrica for nerve pain going from my neck to the finger types. My family dr feels it’s the best option. So much trial and error. I’m 75 and have had this most of my life…