Constant upper abdominal pain

@tjanet did you check your seizure medicine for lactose? Also, I had one gastro doc say I didn't have SIBO and another say I did and put me on the Xifaxin, which resolved the SIBO. But it returns periodically. If you've covered this, then I suggest trying an MFR therapist to see if they find any muscle groups moving as a unit, or a neurologist who does Botox and can pinpoint a muscle group to "relax" the constant pain or a good acupuncturist who can pinpoint the location and treat. I had some amazing work done when I had abdominal pain which wouldn't subside. They worked on stuff having to do with the spleen (they said). I like going to the acupuncture colleges where you can get expert care and it's cheap!

I have constant upper and lower abdominal pain - CRPS was the diagnosis which is what they call it when they can't fix it and can't see it. I tried Gabapentin as I couldn't tolerate the alternatives. I am now trying to reduce the dosage down due to the side effect of severe abdominal bloating and distension...Has anyone else suffered this side effect? Titrating down is so painful. I also had Botox injections into my upper abdomen but so far it just seems to be tightening the band of muscle... anyone else suffering similar? I'm 5 years and counting since the symptoms first appeared after a surgery.

@loriesco
My seizure medicine doesn't have lactose in it. Had an upper endoscopy and GI doctor said it didn't show SIBO.
I don't have bloating, gas,cramping,indigestion or heartburn. Abdominal pain isn't muscle pain it's deep inside my abdomen pain. I have tried Botox injections a few times but didn't help any. Had Abdominal nerves burnt and that didn't help either.

@tjanet upper endoscopy is not how SIBO is determined. Its determined through a 3 hour breathylizing test. How about a hernia?
You probably know this already but;
Abdominal pain that occurs primarily when standing and resolves when sitting or reclining is a classic sign of a musculoskeletal or nerve issue in the abdominal wall rather than an organ problem. Common causes include Anterior Cutaneous Nerve Entrapment Syndrome (ACNES), abdominal muscle strain, or a ventral/abdominal hernia.These conditions share the trait that gravity and upright posture tense or stretch the abdominal wall, compressing nerves or pulling on muscles, whereas reclining allows the muscles to relax.Common CausesACNES (Nerve Entrapment): Small nerves passing through the abdominal muscles can become pinched. The pain is usually sharp or burning, localized to a single spot, and worsens with movement or standing.Abdominal Wall Strain: A pulled muscle or tear in the abdominal wall where the tension of standing causes discomfort that goes away when the muscle is at rest.Hernia: A gap in the abdominal wall where tissue pushes through. A hernia often feels worse when standing or coughing due to increased intra-abdominal pressure, and may reduce or disappear when lying flat.

@loriesco
Because of my Short Bowel Syndrome I can't do the breath test for SIBO, so my GI said that they can tell with a upper endoscopy. My abdominal pain is all the time it doesn't go away. Doesn't matter what I do or don't do I still have constant abdominal pain. I even have constant abdominal pain during the night laying down sleeping,yes my abdominal pain wakes me up at night. No hernia.

@tjanet in that case, ignore their advice.

@tjanet
Someone here mentioned "Abdominal Adhesions" & I am going to
ask the doctor about that because I had a Hysterectomy in 2025 & the pains
may be a result. I have all the symptoms.
Have you gotten a second opinion? Doctors hear you but there is only so
much they can do with so many patients. Have you seen a female physician?

Doctors don't understand my health conditions. I have seen one specialist a couple years ago but I am hoping to see that specialist again. My GI doctor that I see every couple months don't understand my Short Bowel Syndrome condition. He doesn't specialize in Short Bowel Syndrome, he is learning about Short Bowel Syndrome. One of my small bowel obstruction was caused by scar tissue. I have seen a GYN doctor a couple years ago, my abdominal pain isn't a GYN issue.

Since I continue to have constant abdominal pain and nausea, I asked my GI doctor about me getting a MR enterography done and he agreed. However he didn't tell me about the precautionary measures I should watch for or plan for because of my Short Bowel Syndrome. Luckily I am smart enough to do research and know what to watch for and how to be prepared for the MR enterography. My doctors don't understand that I am prone to side effects and adverse reactions to medications and procedures.
I have to plan ahead for the MR enterography appointment and have someone take me, bring me home and stay with me for awhile. Even when I start new medications I need to stay with someone for a few days because of the side effects.

Since I have constant abdominal pain and constant nausea, I got my GI doctor to order a MR enterography in a safe way, so I got done with that on Tuesday morning. I still haven't gotten the results from the MR enterography test. I continue to have constant abdominal pain (not spasms) and constant nausea. I am still not being treated for my health issues. My health issues are getting worse. One good thing is that the MR enterography made my heart palpitations go away.