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@kjs831 just so you know, this Site is a no judgement zone.
Many of the people on this site have fibromyalgia. We have discussions about how we feel, and how it affects us.
There are so many different experiences because fibromyalgia feels different at different times, for different people.
I’ve had it forever (50 years). I get back spasms, and fatigue is always present. The worst part is when my ankles are held (when a doctor checks for fluid), when the inside of my knees are poked, etc. the pain is awful.
You can check for painful “trigger points” on your own. There are drawings online showing where the fibromyalgia trigger points are, check it out. It may give you an answer.
Did your PCP poke at you on certain points? If she did, I promise you would have said ouch. If she didn’t, she needs to. Try it yourself.
Regarding explaining to your parents, or educating anyone else, I think a 3rd party like a doctor would be helpful.
It’s a medical condition not something anyone would want to experience. You can show them the information on this site. It’s here to support anyone.
Keep us informed as to your progress, if you wish. We are here for you!
Susan
Replies to "@kjs831 just so you know, this Site is a no judgement zone. Many of the people..."
I was able to find a list and diagram of the trigger points you mentioned, and I said ouch to all. Thanks for that info. I also remembered that my first chiropractor had said many years ago that I have myofascial pain syndrome. I've had pain in my left shoulder off and on for 30 years. When I was living in GA, i found a really good chiropractor who worked wonders on that pain. Several years ago, it got really bad again, so I went to a place called "The Joint chiropractors" The next day after i went, my arm went numb from my elbow down to my hand, and was ice cold. I went to an urgent care, and the PA was stunned that she could see inflammation caused by whatever the so-called Chiropractor had done. I eventually went to my Orthopedist who did an MRI, and he said "Do not ever let a chiropractor near that shoulder ever again. I believe they can help people, but you are not one of them anymore." And just a few years later, i destroyed that shoulder in a fall. And despite 2 years of care and treatment, I somehow hurt it again last month. I was sitting in a doctor's waiting room, and when I got up to go with the Nurse, i had a really painful spasm. And while the pain isn't as bad as it was that day, it still hurts. I told my shoulder orthopedist to just remove the left side of my body and replace it with one that isn't a mess.
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@SusanEllen66
Thank you so much, Susan. I'm going to take a look at those drawings on line for the Fibro trigger points. I have tremors in my left arm, which just started out of nowhere back in the late fall. I destroyed my left shoulder in a fall back in 2024. But everything is healed. I've always had pain back in that shoulder, it never fully goes away. So if i get poked in that area, I will definitely say ouch. The Neuro sent me for a DaT scan to look for traits of Parkinsons, but it came back fine. 4 day at home EEG, they saw the tremors I have while sleeping. But there was nothing going on in my brain that indicates seizures or Parkinsons. My knees have always hurt, because I don't walk for exercise. My Ortho NP said to walk to help out the pain, but the walking also causes pain. The biggest thing is the exhaustion, it's exactly like the exhaustion when you have the flu, as is the achyness. I'm definitely going to read other's posts so i can learn more.