small study: high dose NAC might help bronchiectasis patients
Hello. A recent double-blind study (17 subjects) showed that high-dose NAC (2400 mg daily) improved lung function and quality of life in bronchiectasis patients, and provided other benefits. Hopefully a larger study will be undertaken soon. As always, best to work with your doctor when considering new therapies. The dosage in this study is about twice as high as some of the other NAC research papers.
https://pubmed.ncbi.nlm.nih.gov/38141851/
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@narelled23 Y es, thank you......it is worthwhile mentioning.
As yet, I have not brought up 3 cups of what I clear from my throat each day. It can be as much as 3/4 of a cup each day. Only a very small fraction of it is the yellow mucus that will settle at the bottom of the clear plastic solo cup. Most of it is moisture/liquid that is not mucus. All the more reason why we need to be drinking liquid....water.
About a month ago I changed the nebulizing routine.
I am trying to see what might work better for me.
I nebulize every other day.
On the day I nebulize I only use half of the vile in the A.M. and the other half in the P.M. I cover the vile until the P.M. I run the compressor to clear out the tubing of any liquid that might be in it after each time I nebulize.
I do have to stop and clear while I am nebulizing to clear what comes up in the area of the throat. I believe for me it is the mucus, saliva, water/moisture from the lungs and possibly the stomach......... I do bring up mucus plugs quite often. They are specs to small pieces in size ....those small pieces however can "grow" if not cleared out while they are small . If mucus stays in the damaged lungs it creates a good size mucus plug...for me.
However, every day the first thing I do are my exercises. Simple leg and arm exercises and then I walk for 15 minutes which is about a mile a day.
Then I nebulize if it is my nebulizing day.
Everyday I do percussion therapy on myself and then do postural drainage. After several go rounds of both and during I clear what had come up to my throat.
I am also trying harder to get more glasses of water in a day, especially to replenish the moisture that comes up with the clearing of mucus and what my bladder releases with each cough, more so if I am not sitting. 😒
I also am trying very hard to slow down while I eat. I have been one of those fast eaters and I think that is something I have to change due to either the BE or possible Water Brash. .I am taking more time to eat by waiting longer in between bites. I say water brash due to the very first incident I had that I feel is related to one of my problems. About a year before I was diagnosed with BE while I was eating and had finished chewing and swallowing a large clear glob rushed up to my throat and mouth. I can remember saying to myself "What was that?"
I do now believe, that was my first indication that something was wrong. Water brash involves hypersalivation while acid is rising. One of the ENT doctors I did see before the BE diagnosis said he felt I had hypersalivation. He did not perform a special test to confirm it.
As we know all this takes a great deal of time out of the day.
Your rehab center sounds like they did good by you with all they took time to observe.
Regarding our clearing the throat issue.
I have been trying hard to think about what to do with the tendency to always clear what comes up to my throat. Rather than clear it I am trying to just swallow but it is a task that requires much change due to having cleared it out for the last 3 years. Most of the time I am not coughing to get it up just sucking it further up and out. I believe it is saliva/hypersalivation. I truly don't know for sure but it seems logical due to what I feel and see in the cup.
Wow "feel almost normal again" how wonderful for you. I'm not there but hope I can say the same thing in the near future.
Thanks for thinking of me. Interesting that we both are trying nearly to do the same thing.
Barbara
@sueinmn Thank you Sue.
I had been using hypertonic nebulising only once a day for the last year or so, but seem to have gotten into a long term habit of coughing/feeling the need to cough. I always produced something...but the physios felt that that 'something' was not coming from the lungs I guess. I am not sure how this is going to pan out longer term - it has only been a week now, but I have had little problem not coughing now that I am not doing much nebulising...and even in the mornings I am not producing endless mucus. I believe I hadn't heard that coughing could create more mucus. I was worried about it causing damage to throat/lungs and remember we had discussed it before. However in the last 4 years that I have been nebulising regularly I have gradually produced more and more mucus - not less! I started nebulising after consulting the LM Facebook page and while I am sure it helped me avoid infections it appears to have become a vicious circle for me. Thank you for being the one who originally mentioned that it was ok to cut the nebulising back.
For the rest, it is a watch and see what happens. I would probably nebulise more with an infection or where I felt the need to, but for the moment I don't seem to need it thankfully. My Bronchiectasis is mild...along with mild COPD.
Other than that, I keep pretty active generally, gym 4 times a week, walking once or twice a week around 8klms.
I have had shallow breathing most of my life and at times have attempted to change to diaphragmatic breathing, and will persevere with the exercises recently given...at least I have become more aware of that as an issue.
Wishingt everyone all the very best.
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