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Squamous Cell Vulvar Cancer: Who out there has this cancer?

Posted by bobette1 @bobette1, Oct 10, 2022

Just diagnosed a week ago. Who is out there with this cancer? Looking for advise, tips and what to expect as I start my journey. TIA

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jade2026 | @jade2026 | 1 day ago
In reply to @naturegirl5 "@jade2026 June 29 is coming up soon. While entering into treatment is frightening there is also..." + (show)
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@jade2026 June 29 is coming up soon. While entering into treatment is frightening there is also some solace in it (at least that was the case for me). I was actively working with my doctors and other providers. I wasn’t standing still.

I read the following recently in “Mindful Body” by Ellen Langer about decision-making. This really resonated with me.

I often second-guess myself and wonder if I made the right decision. Langer says this (I am paraphrasing)

We never have all the “necessary” information and tend to over-analyze. (That’s me in a nutshell). Then we experience decision paralysis. So her advice is that when you make the decision “commit to the outcome”. We can actively look for how our choice can work to our advantage and then grow with it. Langer writes “Instead stressing over the right decision you can make the decision right”. Since you often do not know if the unchosen path would have been better you can make your decision “right” for you.

I’m not sure I totally captured this concept. I do find it works for me. What do you think?

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@naturegirl5 I love that concept and I can definitely use it to my advantage. Thanks so much for sharing. My radiology oncologist called me Yesterday to update my plan slightly. He will be using a different dosage that he says will give me a better outcome, but I will need to have six weeks +3 days of radiation instead of six weeks. I agreed to that plan and we are now starting on the 30th. Today is the last day I can “pretend” I don’t have cancer because I’m getting my PICC line inserted. I am very ready to get started with treatment and I really appreciate the support.

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jade2026 | @jade2026 | 1 day ago
In reply to @samanthabouchard "@ljchicago I’m in New Hampshire looking for support as well. Reach out maybe we can coordinate..." + (show)
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@ljchicago I’m in New Hampshire looking for support as well. Reach out maybe we can coordinate with each other. We could all use a hug
Sam radical vulvectomy 2019. Possibly looking at a reoccurrence appt 7/2 surgery last Monday

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@samanthabouchard I’m sorry that you’re dealing with possible reoccurrence. That has to be so concerning. Have your doctors discussed treatment options yet?

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samanthabouchard | @samanthabouchard | 1 day ago

Thank you very much worked out hard. My only hopes is that I caught it earlier than the first round as we all know we fight the same battle. I feel bad for the young girls who get this I’ve had my time of intimacy, etc. etc. it’s quite an invasive cancer. I have an appointment on July 2 of course with my chart, the released all information except the results of the biopsies kind of unsettling wait-and-see game you know how it goes.

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