@hopeful33250
When I was first diagnosed, I had had an endoscopy in late 2016 because of GERD like symptoms. My gastroenterologist recommended an EUS and when they did the biopsy they discovered I had a NET of the pancreas. When I investigated places for surgery I decided on Hopkins as I live in Virginia and it was the nearest major cancer center with a team approach for followup care after surgery. I have gotten a CT at a Hopkins facility every year and have felt fine. After the CT in late November 2025, they requested an MRI and then a PET. I had mets to the liver. I had a biopsy to determine if it was the same cancer and to decide if I was a candidate for "debulking". It was decided that because of the number mets and their being in both lobes that I was not a candidate. The cancer is the same slow growing cancer. I was started on Lanreotide in March. I have felt fine until about a month ago. I have noticed my blood pressure is exceptionally high, my joints in my hands hurt, I am very tired, and I have more dark spots on my face and those that are there have darkened. The pain in my hands is ameliorated with Tylenol but the blood pressure is scary. I am monitoring it at home and my local oncologist, my PC and my cardiologist are aware of it.