Predisone

@becsbuddy
Last November I was having some double vision in my left eye and some dizziness. Brain MRI showed inflammation. Was in the hospital for a couple of days for testing, All of my symptoms were gone and I felt fine before I left the hospital I had no treatment or medicine. I followed up with Neuro at Duke 2 weeks later, and told they were not sure what it was, but started me on high dose prednisone. After 3 weeks started having back pain and night sweats, with no explanation, remained on prednisone for 3 months then switched to Mycophenolate. I actually did not feel bad until after taking prednisone, but no one has an explanation. I did have a positive TB test before starting prednisone, said it was Laten TB. Infectious disease would not treat it until I had a second positive test but both times repeat tested I had been on prednisone or Mycophenolate, so not sure they were valid. But they do say don’t think it’s TB, but don’t know what it is. I am going to get a second opinion at UNC and talk about getting off Mycophenolate. Any suggestions or advice?
Thanks,
Deb

@ebjj4health
Was your TB test a blood test or skin test? The skin test gets false positive results.

My pmr returned after prednisone treatment

@baydog0937
Did you go back on prednisone or something else?

@baydog0937
Did you go back on prednisone or something else?

@jcl75 I was diagnosed at Duke with Clippers after DrK Neuro Opthalmology sent me for an MRI. I continue to follow up with him. Are you on auto immune meds now?
Thanks for your advice.
Deb

@ebjj4health
Consider seeing an ophthalmologist for the inflammation. I had similar symptoms and some additional ones. I too was admitted to the hospital as a result of upper, outer vision loss. Multiple tests were done with no diagnosis. Stared on 40 mg of Prednisone. I was seen at Duke Eye Center who promptly sent me to the ER with suspected Giant Cell Arteritis (not arthritis). I was evaluated and an appointment was made to see ophthalmology in the office. I ultimately had a temporal artery biopsy which was positive for GCA, an autoimmune disease. This is considered an emergency in Opthalmology. I am currently being seen by a rheumatologist who manages my care. Every physician I have seen has instructed me to immediately go to an ER as
to avoid further vision loss. This is not to frighten you but to consider a diagnosis that isn't often considered. I hope you find your answer. Be well.

@ebjj4health
Consider seeing an ophthalmologist for the inflammation. I had similar symptoms and some additional ones. I too was admitted to the hospital as a result of upper, outer vision loss. Multiple tests were done with no diagnosis. Stared on 40 mg of Prednisone. I was seen at Duke Eye Center who promptly sent me to the ER with suspected Giant Cell Arteritis (not arthritis). I was evaluated and an appointment was made to see ophthalmology in the office. I ultimately had a temporal artery biopsy which was positive for GCA, an autoimmune disease. This is considered an emergency in Opthalmology. I am currently being seen by a rheumatologist who manages my care. Every physician I have seen has instructed me to immediately go to an ER as
to avoid further vision loss. This is not to frighten you but to consider a diagnosis that isn't often considered. I hope you find your answer. Be well.

@jcl75 I have,same issues
Being treated by Neuro ophthalmologist as,well as rheumatologist
Best wishes on your journey!