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ET with Jak2 and allergies/fatigue

Blood Cancers & Disorders | Last Active: 10 hours ago | Replies (17)

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Profile picture for jodyjazz @jodyjazz

@debhammel I have a few years on you (8 to be specific), and agree with all that you say. The trouble for me is that I am a stubborn, old woman who is used to being competent, and in charge. I am learning that aging is a series of losses, and as you say make peace with some of it. My problem is finding the line between "giving up" and moderating activities.

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Replies to "@debhammel I have a few years on you (8 to be specific), and agree with all..."

@jodyjazz I agree that the line between giving up and moderating is challenging. I'm currently struggling with bicycling. I was an avid road cyclist beginning in my 40s and until I started experiencing hip pain about 6 years ago, which has since been diagnosed as arthritis. Bought an e-bike which allows me to better manage hills but I haven't quite mastered the weight difference between my old road bike and this new bike which is twice as heavy. So, I ride a nearby trail occasionally which isn't nearly as much fun and I am tempted to just give up and sell the bike. The fatigue that comes along with an illness like ET and the medication for it also requires I don't workout as hard at the gym so moderation/modification have become my favorite words.