← Return to Hydroxyurea: what side effects were so bad you had to stop taking it?

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@garyr443
My RBCs have been low well before HU but they have taken a slight downturn. My Oncologist lowered my HU to 500 mg 3 days a week from 4 but my platelets jumped from 398 to 499 in three week and my RBCs just increased slightly. I want to go back on 4 times a week but they want to wait and see. They don't want me to start iron but I am doing it anyway because I really want to get the RBCs up and the platelets down and I have no real side effects from the HU.
Please keep us informed about the results from the cranberry juice. I would love to get my RBCs up without starting a new medication that might have side effects.

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Replies to "@garyr443 My RBCs have been low well before HU but they have taken a slight downturn...."

@scienceteacher Has your hematologist recommended taking Vitamin B12 and Folic Acid? Mine put me on these two B vitamins from the start, to compensate for the low red blood cells. So, I have been taking B12 and Folic Acid daily for 12 years. If it's helping, it's only to keep my red blood cells from disappearing altogether!

@scienceteacher Will do! I'm going to be tested again on July 3 and I will know how well the cranberry juice really works with platelet count. It's been doing well for maintaining normal bloodpressure.

@scienceteacher I recall reading that taking iron supplements is not the way to increase your red cells. You would think it can, and I thought the same thing, myself, but, as it turns out, for some reason, that's not a good idea. If I see what I read about that, I'll share it with you.

@scienceteacher As it turned out, the lab was closed for the holiday on Friday (they just have to get a three-day weekend, you know), it will be Monday the 6th when I get my lab results.

@scienceteacher Well, what a huge dissapointment the cranberry experiment turned out to be! First, my platelet count rose, instead of staying normal. My red cells did improve, but not nearly as much as hoped for. As for the question "does cranberry juice lower or raise white cell count?", it turns out that it does raise white cell count. So, a total bust! But, I had to do it, just to see if it would work. Now I know. So, tomorrow, it's back to the Hydroxyurea and the Lisinopril.