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Hydroxyurea: what side effects were so bad you had to stop taking it?
Blood Cancers & Disorders | Last Active: 31 minutes ago | Replies (41)Comment receiving replies
@garyr443
My RBCs have been low well before HU but they have taken a slight downturn. My Oncologist lowered my HU to 500 mg 3 days a week from 4 but my platelets jumped from 398 to 499 in three week and my RBCs just increased slightly. I want to go back on 4 times a week but they want to wait and see. They don't want me to start iron but I am doing it anyway because I really want to get the RBCs up and the platelets down and I have no real side effects from the HU.
Please keep us informed about the results from the cranberry juice. I would love to get my RBCs up without starting a new medication that might have side effects.
Replies to "@garyr443 My RBCs have been low well before HU but they have taken a slight downturn...."
@scienceteacher Will do! I'm going to be tested again on July 3 and I will know how well the cranberry juice really works with platelet count. It's been doing well for maintaining normal bloodpressure.
@scienceteacher I recall reading that taking iron supplements is not the way to increase your red cells. You would think it can, and I thought the same thing, myself, but, as it turns out, for some reason, that's not a good idea. If I see what I read about that, I'll share it with you.
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@scienceteacher Has your hematologist recommended taking Vitamin B12 and Folic Acid? Mine put me on these two B vitamins from the start, to compensate for the low red blood cells. So, I have been taking B12 and Folic Acid daily for 12 years. If it's helping, it's only to keep my red blood cells from disappearing altogether!