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Anyone taking Brinsupri with current NTM disease?

MAC & Bronchiectasis | Last Active: Jun 23 11:48pm | Replies (8)

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Hi Ingrid, I have a small area on my back that's dry and itchy and I have already had an actinic keratosis lesion removed. It's really a combination of the skin issues and the fact that there just isn't any information out there that supports no repercussions to those of us with NTMs. That said, less inflammation and less mucus is a good thing for us with NTMs. So, I will talk to my Pulm doctor next month but may wait until my October CT before I make the decision.

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Replies to "Hi Ingrid, I have a small area on my back that's dry and itchy and I..."

@kathyjjb Hi...
I looked up actinic keratosis lesion after seeing your post. I believe that is one or two areas on my back. I have a couple of skin issues that I see the dermatologist for. I was diagnosed with atopic dermatitis/eczema at the same time I was diagnosed with BE.
I don't know for sure but I have a feeling some of us develop skin conditions with the infections themselves. Mine so far, it is just Intercellulare, that I have.
Since having started with a new pulmonologist they are also testing for fungal issues with the sputum. Surprising to me with the two I have sent in so far....three different types of fungal infections have been declared by the labs. So far it appears the doctor, pulmonologist, doesn't think much of it since I have not had a message from him. I see him in the fall and will ask then since I feel OK...except for the energy given to the daily BE mucus clearing sessions and how I feel afterwards. It can drain me somewhat.
Also, as said before, I am not on any medications so I can't blame medications for the skin problems. I also don't think the dermatologists fully know the why and cause of the skin conditions. No blood tests or sputum tests performed by the dermatologist.
Has your dermatologist done blood tests or sputum tests? 🤔
Barbara