← Return to Anyone taking Brinsupri with current NTM disease?

Discussion
kathyjjb avatar

Anyone taking Brinsupri with current NTM disease?

MAC & Bronchiectasis | Last Active: Jun 23 11:48pm | Replies (8)

Comment receiving replies
Profile picture for ingrid1947 @ingrid1947

Yes I started Brinsupri 3 mos ago and Absessus being watched for about 2 years. I have my next cultures in October. I will ask my ID Dr. the same question. And my pulmonologist again when I see him. He told me that he has another patient with BE and Abscessus that began Brinsupri last year and it is helping him. But don't know about his NTM status either. Since the NTM seems to come and go anyway I wonder how they would know except from a long term study. My ID Dr. kind of always preaches quality of life and I guess we need to also weigh that. I am feeling better with less mucus and coughing since Brinsupri but I have skin and liver side effects. I am 78 and have had the BE/NTM diagnosis since 2008. I've had MAC treated twice and another NTM twice, but my Drs. have held off treating the Abscessus because the treatment is so horrendous.

Jump to this post


Replies to "Yes I started Brinsupri 3 mos ago and Absessus being watched for about 2 years. I..."

@ingrid1947 Thanks Ingrid! Your situation with the Abscessus sounds much like mine. Though, I've never had MAC, just the Abscessus and currently just the skin issues. I am leaning towards at least trying the 10 mg but will wait until my follow up next month. I agree with your ID doctor about quality of life, it's a balance. Good luck to you and let's just hope and pray we both are able to avoid the RX. I'm sending in sputum samples to NJH every 3 months. I really like their lab since they do the colony counts.