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Ringing or pounding in ears

Posted by Elizabeth R @elizabethannr, May 7 6:57am

Is anyone else experiencing ringing or pounding in their ears? I am down to 5 mg from 25 mg and this began when I was at around 9 mg. It especially seems to come on at night when I lie down and sometimes it wakes me up. During the daytime it either lessens or else I don't notice it due to daytime other sounds.

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aflik | @aflik | 23 hours ago
In reply to @pbk128 "@aflik Side effects can depends on how much prednisone you are taking…. I’ve been on and..." + (show)
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@aflik Side effects can depends on how much prednisone you are taking…. I’ve been on and off 10 mg and easily tapering down w no obvious side effects! Less obvious side effect, of course, my dexa scans show my bone density is only very slightly less than the previous scan ! I too have mild tinnitus but there is absolutely no increase in since I started prednisone! Sorry you are having such severe side effects to the first line drug for PMR…assuming that is why you are taking it?

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Thanks for your comments. Yes, it’s exactly why I’m taking it. I’m also on
Actemra infusions every 4 wks. The hope is that once I taper off Pred the
Actemra will take over completely. 🙏

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pbk128 | @pbk128 | 21 hours ago
In reply to @aflik "Thanks for your comments. Yes, it’s exactly why I’m taking it. I’m also on Actemra infusions..." + (show)
Profile picture for aflik @aflik

Thanks for your comments. Yes, it’s exactly why I’m taking it. I’m also on
Actemra infusions every 4 wks. The hope is that once I taper off Pred the
Actemra will take over completely. 🙏

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@aflik
Do you have another condition besides PMR.? Several folks have mentioned being on actemra for PMR plus some other condition.., in my reading/research PMR is not one of the conditions for which Actemra is FDA approved! Just curious because my rheumatologist has not mentioned it!

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kathleendw | @kathleendw | 2 hours ago

Update: Parathyroidectomy 4 weeks ago did not solve the tinnitus. Still taking 5mg Prednisone for PMR. Hopefully as the dosage decreases it will subside.

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