Nerve and weakness issues after food poisoning in Sri Lanka

Hi everyone,

I’m hoping someone here might have experienced something similar or can share what their eventual diagnosis turned out to be.

Earlier this year I was on holiday in Sri Lanka and developed a sudden gastrointestinal illness with severe vomiting and stomach cramps after a meal. The stomach illness settled, but within days I started developing neurological symptoms that have now been ongoing for several months.

My symptoms include:

* Weakness and heaviness in both legs (especially my thighs)
* Difficulty getting up from the floor or low chairs
* Muscle twitching (mainly calves and hands)
* Fatigue
* Occasional balance problems
* A feeling that my legs just don’t work as they used to

I’ve also had recurrent mouth ulcers, sore gums and a very sore tongue on and off since all of this started.

I’ve had extensive investigations including:

* MRI
* Lumbar puncture
* Lyme disease testing
* Autoimmune blood tests
* Infectious disease blood tests
* Two EMG/nerve conduction studies

My neurologist has told me that it seems to be affecting my peripheral nervous system, but they still don’t know exactly what the diagnosis is. A lot of conditions have been ruled out, and I’m being monitored with follow-up appointments and repeat nerve testing.

I’m not looking for a diagnosis on Reddit, but I’m wondering whether anyone has experienced neurological symptoms developing after a gastrointestinal illness or suspected food poisoning.

If you have, I’d really appreciate hearing:

* What was eventually diagnosed?
* How long did it take to get answers?
* Did you recover?
* Was there anything that helped?

Thank you so much.