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Moderator

Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

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granny73 | @granny73 | 2 days ago
In reply to @bubbly4me "Hello, and thanks for links - I will check those out shortly. Yes, I've seen a..." + (show)
Profile picture for bubbly4me @bubbly4me

Hello, and thanks for links - I will check those out shortly.

Yes, I've seen a neurologist and had an MRI of the lower back as well as conduction tests etc. He said it was Diabetic Neuropathy. It makes sense as I've been diabetic for many years and didn't manage it well at first. The only part I don't understand is why it's nearly always only in one foot at a time.

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@bubbly4me I am diagnosed with sensory zonal distal peripheral neuropathy of undetermined etiology. I need B12 600.

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ceefer | @ceefer | 7 hours ago

Hi first time posting. I have diabetes and a PNET, currently not in any treatment for it. Small watch and see. I e also been diagnosed with neuropathy. Currently on Lyrica for it. My question is do anyone else have really bad numbing and tingling burning to the point it feels like something biting from top of head all the way down body to your feet (right side)?

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Mentor
John, Volunteer Mentor | @johnbishop | 5 hours ago
In reply to @ceefer "Hi first time posting. I have diabetes and a PNET, currently not in any treatment for..." + (show)
Profile picture for ceefer @ceefer

Hi first time posting. I have diabetes and a PNET, currently not in any treatment for it. Small watch and see. I e also been diagnosed with neuropathy. Currently on Lyrica for it. My question is do anyone else have really bad numbing and tingling burning to the point it feels like something biting from top of head all the way down body to your feet (right side)?

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Hi @ceefer, I don't have a PNET or the burning with my neuropathy but do have the numbness and some tingling in both legs. There are members who have mentioned PNET and neuropathy if you want to scan through their comments while you wait for others to respond - https://connect.mayoclinic.org/search/

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