Hello and welcome, deesj68.
Hope the Hydrea is bringing down your platelet count. You'll have more energy as that happens!
Two amateur suggestions: Sometimes ET, as it puffs up our blood with surplus platelets, causes our spleens to swell. The spleen is kinda in the waistband area.
A more likely explanation is -- as I know all too well -- that HU can cause constipation.
Try upping your fiber intake with apples, whole grains breads and cereal, pretzels rather than chips. Start checking labels for the fiber content of foods.
Oatmeal is wonderful for constipation too. Easiest of all is drinking more water! Strive for a half gallon or even a full gallon a day. That will address feeling thirsty too.
Please let us know how you're doing!
@janemc
Thank you for your reply. I hadn’t thought about the spleen might be swollen. My platelets dropped quite abit the first month but very little last month. Have my next bloods on Monday so I’m hoping they will come down more. Last month my haematologist was debating upping my Hydrea dosage so I will know more after my bloods next week and my consultation the following week. Yes I’m trying to up my water intake too and be more mindful of my diet but easier said than done !