1. < Neuropathy
Moderator

Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

athenalee | @athenalee | Mar 27, 2021

In case you haven’t seen this webinar offering: Nutrition for Patients with Peripheral Neuropathy
Thursday, April 22
3:00 – 4:00 p.m. ET; 2:00 – 3:00 p.m. CT; 1:00 – 2:00 p.m. MT; 12:00 – 1:00 p.m. PT
https://attendee.gotowebinar.com/register/5945564460258907151
For more info: https://www.foundationforpn.org/events/

REPLY
1 reply
helennicola | @helennicola | Mar 27, 2021
In reply to @athenalee "In case you haven’t seen this webinar offering: Nutrition for Patients with Peripheral Neuropathy Thursday, April..." + (show)
@athenalee

In case you haven’t seen this webinar offering: Nutrition for Patients with Peripheral Neuropathy
Thursday, April 22
3:00 – 4:00 p.m. ET; 2:00 – 3:00 p.m. CT; 1:00 – 2:00 p.m. MT; 12:00 – 1:00 p.m. PT
https://attendee.gotowebinar.com/register/5945564460258907151
For more info: https://www.foundationforpn.org/events/

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thanks for that atheenalee, I signed up and asked THE question! It will be interesting to see if the Dr. responds, also, I hope I remember to watch!!😁 Helen

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sandibritton2021 | @sandibritton2021 | Mar 29, 2021

I am brand new to this group and have already appreciated the posts. Actually I have interests in many groups and qualify for many. My neuropathy started some time ago. In my thirties I was in competitive running and ran two marathons which was a strain on my nerves to say the least. I m noticing weakness in my hands but primarily my problems are in my feet. By the end of the day, showering is a big challenge and I have had many times when I was almost unable to walk. At night my feet feel numb. Perhaps I should get a Mayo doctor to take a look for an accurate diagnosis. Does anyone have any suggestions for a doctor for this condition?
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3 replies
terryzrust | @terryzrust | Mar 29, 2021

See if your primary physician thinks a visit to a neurologist would be a good idea.

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Mentor
John, Volunteer Mentor | @johnbishop | Mar 29, 2021
In reply to @sandibritton2021 "I am brand new to this group and have already appreciated the posts. Actually I have..." + (show)
@sandibritton2021

I am brand new to this group and have already appreciated the posts. Actually I have interests in many groups and qualify for many. My neuropathy started some time ago. In my thirties I was in competitive running and ran two marathons which was a strain on my nerves to say the least. I m noticing weakness in my hands but primarily my problems are in my feet. By the end of the day, showering is a big challenge and I have had many times when I was almost unable to walk. At night my feet feel numb. Perhaps I should get a Mayo doctor to take a look for an accurate diagnosis. Does anyone have any suggestions for a doctor for this condition?

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Hello @sandibritton2021 and @terryzrust, I would like to welcome you both Mayo Clinic Connect. I like the suggestion by @terryzrust to discuss your symptoms with your primary care doctor to see if they think you should see a neurologist for a diagnosis. Have you discussed your symptoms with your doctor?

@terryzrust - Have you been diagnosed with peripheral neuropathy?

REPLY
2 replies
sandibritton2021 | @sandibritton2021 | Mar 29, 2021
In reply to @johnbishop "Hello @sandibritton2021 and @terryzrust, I would like to welcome you both Mayo Clinic Connect. I like..." + (show)
@johnbishop

Hello @sandibritton2021 and @terryzrust, I would like to welcome you both Mayo Clinic Connect. I like the suggestion by @terryzrust to discuss your symptoms with your primary care doctor to see if they think you should see a neurologist for a diagnosis. Have you discussed your symptoms with your doctor?

@terryzrust - Have you been diagnosed with peripheral neuropathy?

Jump to this post

My podiatrist has recommended Metanz which is a high Vitamin B complex. It has really been great. I also take Lyrica which is helping me as well. I also take great care of my feet with orthotics and lots of night cream. I hope this helps.

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1 reply
Leonard | @jakedduck1 | Mar 29, 2021
In reply to @sandibritton2021 "My podiatrist has recommended Metanz which is a high Vitamin B complex. It has really been..." + (show)
@sandibritton2021

My podiatrist has recommended Metanz which is a high Vitamin B complex. It has really been great. I also take Lyrica which is helping me as well. I also take great care of my feet with orthotics and lots of night cream. I hope this helps.

Jump to this post

@sandibritton2021
Have you had any side effects from Lyrica?
Take care,
Jake

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Leonard | @jakedduck1 | Mar 29, 2021
In reply to @sandibritton2021 "I am brand new to this group and have already appreciated the posts. Actually I have..." + (show)
@sandibritton2021

I am brand new to this group and have already appreciated the posts. Actually I have interests in many groups and qualify for many. My neuropathy started some time ago. In my thirties I was in competitive running and ran two marathons which was a strain on my nerves to say the least. I m noticing weakness in my hands but primarily my problems are in my feet. By the end of the day, showering is a big challenge and I have had many times when I was almost unable to walk. At night my feet feel numb. Perhaps I should get a Mayo doctor to take a look for an accurate diagnosis. Does anyone have any suggestions for a doctor for this condition?

Jump to this post

@sandibritton2021
You look so familiar. Do or did you live in California? If not you have a twin here.
Leonard

REPLY
pondoak | @pondoak | Mar 29, 2021
In reply to @sandibritton2021 "I am brand new to this group and have already appreciated the posts. Actually I have..." + (show)
@sandibritton2021

I am brand new to this group and have already appreciated the posts. Actually I have interests in many groups and qualify for many. My neuropathy started some time ago. In my thirties I was in competitive running and ran two marathons which was a strain on my nerves to say the least. I m noticing weakness in my hands but primarily my problems are in my feet. By the end of the day, showering is a big challenge and I have had many times when I was almost unable to walk. At night my feet feel numb. Perhaps I should get a Mayo doctor to take a look for an accurate diagnosis. Does anyone have any suggestions for a doctor for this condition?

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The Mayo Clinic does a great job if they take you. There is an application process.

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terryzrust | @terryzrust | Mar 29, 2021
In reply to @johnbishop "Hello @sandibritton2021 and @terryzrust, I would like to welcome you both Mayo Clinic Connect. I like..." + (show)
@johnbishop

Hello @sandibritton2021 and @terryzrust, I would like to welcome you both Mayo Clinic Connect. I like the suggestion by @terryzrust to discuss your symptoms with your primary care doctor to see if they think you should see a neurologist for a diagnosis. Have you discussed your symptoms with your doctor?

@terryzrust - Have you been diagnosed with peripheral neuropathy?

Jump to this post

Yes, my neurologist diagnosed axonsal sensiomotor polyneuropathy via nerve conduction and EMG testing.

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