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meningioma

Posted by bob5555 @bob5555, May 25 6:40pm

Well, this did upset me to know this is why I feel the way I do .....scared

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vernicek | @vernicek | Jun 13 9:23am
In reply to @jvo2020neb1 "I just had my repeat MRI for my meningiomas. They didn't grow any at the 3-month..." + (show)
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I just had my repeat MRI for my meningiomas. They didn't grow any at the 3-month mark, but are recommending Gamma knife to control them now, while they are controllable. The primary tumor is 2.5 cm, and the other three masses are about 0.7 cm each. My primary meningioma has affected my hearing and some dizziness. Have others had dizziness from their meningiomas? I would welcome any conversations on Gamma Knife as well.

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@jvo2020neb1 A friend of mine successfully had Gamma Knife surgery, at the UC Davis Medical Center, three years ago and has had no regrowth. He is meningioma is carefully monitored by yearly MRI’s. I am not a candidate for the Gamma Knife and wish I was! You are lucky!

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Maryann | @mkoch | Jun 13 12:59pm
In reply to @jvo2020neb1 "I just had my repeat MRI for my meningiomas. They didn't grow any at the 3-month..." + (show)
Profile picture for jvo2020neb1 @jvo2020neb1

I just had my repeat MRI for my meningiomas. They didn't grow any at the 3-month mark, but are recommending Gamma knife to control them now, while they are controllable. The primary tumor is 2.5 cm, and the other three masses are about 0.7 cm each. My primary meningioma has affected my hearing and some dizziness. Have others had dizziness from their meningiomas? I would welcome any conversations on Gamma Knife as well.

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@jvo2020neb1: Just curious, with regard to the 2.5 cm. meningioma did the doctor tell you it's in a location that is too dangerous to remove it?

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jvo2020neb1 | @jvo2020neb1 | Jun 15 9:24am
In reply to @vernicek "@jvo2020neb1 A friend of mine successfully had Gamma Knife surgery, at the UC Davis Medical Center,..." + (show)
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@jvo2020neb1 A friend of mine successfully had Gamma Knife surgery, at the UC Davis Medical Center, three years ago and has had no regrowth. He is meningioma is carefully monitored by yearly MRI’s. I am not a candidate for the Gamma Knife and wish I was! You are lucky!

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@vernicek That is good to hear, thanks for sharing. They didn't give me a timeframe as to when to have Gamma Knife.

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jvo2020neb1 | @jvo2020neb1 | Jun 15 9:27am
In reply to @mkoch "@jvo2020neb1: Just curious, with regard to the 2.5 cm. meningioma did the doctor tell you it's..." + (show)
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@jvo2020neb1: Just curious, with regard to the 2.5 cm. meningioma did the doctor tell you it's in a location that is too dangerous to remove it?

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@mkoch They said I could have more damage from surgery since my tumor is located near the brain stem and is hard to reach. I could have additional hearing loss and migraines from surgery. It's also grown into the IAC, and they would not be able to remove a lot of it. I am on the young side for this kind of diagnosis, which is what worries me about having radiation at my age, not yet 50.

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doyel | @doyel | Jun 16 10:09am
In reply to @jvo2020neb1 "@vernicek That is good to hear, thanks for sharing. They didn't give me a timeframe as..." + (show)
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@vernicek That is good to hear, thanks for sharing. They didn't give me a timeframe as to when to have Gamma Knife.

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@jvo2020neb1

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doyel | @doyel | Jun 16 10:12am
In reply to @doyel "@jvo2020neb1" + (show)

@doyel I have .you 6 month evaluation next week. I am 79 so not sure what there approach will be. Praying we can still wait and see

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vernicek | @vernicek | Jun 17 10:09am

Best of luck to you! Please keep us updated.

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susanf60s | @susanf60s | Jun 22 6:45am

In 2008, I was having petti-mal seizures (dizzy, winking out, etc.) and didn't realize what was happening to me at the time they "discovered" a rather large 1" round meningioma pressing on my right brain. Thankful to God it was benign (not into the brain or affecting my eye) and removed in brain surgery. Have had clear MRIs the following 10 years and another clear MRI after 18 years.

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k5t | @k5t | Jun 27 9:02pm
In reply to @susanf60s "In 2008, I was having petti-mal seizures (dizzy, winking out, etc.) and didn't realize what was..." + (show)
Profile picture for susanf60s @susanf60s

In 2008, I was having petti-mal seizures (dizzy, winking out, etc.) and didn't realize what was happening to me at the time they "discovered" a rather large 1" round meningioma pressing on my right brain. Thankful to God it was benign (not into the brain or affecting my eye) and removed in brain surgery. Have had clear MRIs the following 10 years and another clear MRI after 18 years.

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@susanf60s
Congratulations! Were you referred to radiation?

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susanf60s | @susanf60s | Jun 29 10:22am
In reply to @k5t "@susanf60s Congratulations! Were you referred to radiation?" + (show)
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@susanf60s
Congratulations! Were you referred to radiation?

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No radiation because the meningioma was benign.

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