Living with Neuropathy - Welcome to the group

I talked to my primary care about and he is requesting copies of everything for my file. I am supposed to see him on the 8th but I think I am going to request to see him sooner and ask for a doppler just to be sure there is no blood clots as well. This is my 3rd one and I have never had a problem with my foot. The surgeon said everything is in order and he said when they can't find out what is causing it they blame neurology. So they did an EMG and said it was normal but something they did made my toes stop tingling for a moment it came back with a vengeance. some times I can't put shoes or socks on. Once I settle down for the night it starts to contract and hurt so bad it's stays so sensitive that I can barely keep a sheet on it. Today is the first day that it has made me cry. cause I am stuck be tween the rock and the hard place.

Twins!!! 🤣

Hello @wannie, I would like to add my welcome to Connect along with @lacy2 and other members. There is another discussion where members are discussing conditions and symptoms similar to yours. You might want to read through the posts and learn what others have shared on problems after a knee replacement. It's good that your primary care doctor is requesting copies of everything done for your file. I would also keep a daily log of any new symptoms that might pop up and how you feel pain wise along with a list of questions for the doctor at your upcoming appointment. You can find some good information on how to plan your conversation with the doctor on The Patient Revolution website here: https://patientrevolution.org/visit-tools

Foot neuropathy after total knee replacement: https://connect.mayoclinic.org/discussion/foot-neuropathy-after-total-knee-replacement/

Can you provide an update after your appointment?

Hello. I am Cindy. I have had neuropathy for about 15 years. I have numbness and tingling that started in one toe originally, that has now progresses to both feet and legs to the knee. I have no pain. Recently in the last year, I have had increase in irritating sensation in both legs. I believe initially this was caused by the lockdown and lack of access to exercise facilities. This year I have changed to a sugar free, high fat diet, which helps a lot. I am not diabetic. I am also back to the gym. In June of 2020 I had decompression surgery on one foot and stem cell infusion on both feet. Though the decompression surgery has had very little affect, the stem cell infusion has been valuable. I have had much more feeling in my feet and calming in my legs. It seems to be waning a bit so I may need another infusion in the future. I also am take a plethora of vitamins, after having all vitamins minerals tested last year. I am not sure if that is having any affect on the neuropathy.

Cindy, Since you are not diabetic, could you share the root cause of your neuropathy? I am in a similar situation (non diabetic) so curious.

I was at the Mayo Clinic this year for testing. They believe it is a genetic issue.

Hello @pondoak and welcome to Mayo Clinic Connect. Thank you for sharing your story and what you have found to be helpful to your neuropathy so other members can connect with you as well.

You sound like you have been very proactive in your journey. How can members in this discussion be of support to you?

Thanks Cindy. In my case the neuropathy was triggered by pernicious anemia, a genetic condition.

Hi Cindy, are you in USA?

Yes, I am in Michigan.