Living with Neuropathy - Welcome to the group

Hi John sorry for interrupting discussion. Feel silly but how do I log myself iback in as need to ask u important questions. Thanks

@poppsy1, If you can post on Connect like you did here you are already logged into Connect. You just need to go to the bottom of a discussion and type your question and if it's to a specific member, make sure you type their member name like I did so that you would receive an email notification for this post. You can also go to the bottom of any Connect page and click the link Contact Mayo Clinic Connect and send a message to a moderator. The link is located in the footer of the page in the left most column.

Many thanks John

I had a my right knee replaced on November 11th 2020. I woke up from the surgery with the toes on my right foot freezing all except my big toe. So the knee hurts but my toes and my foot swell and give me all types of pains. I have had a nerve test and they said it is normal. I am in so much pain I don't know what to do. Does anyone have any suggestions. I am taking 2 nerve meds, 1 muscle relaxer 500mg of Tylenol and its not helping.

@wannie .... sorry i dont know answer but just noticed your post and my first thought is; doesnt sound right to me that a knee replacement would end up with swelling, cold and pain in one foot!!

Nerve test can show normal but doesn't mean there isn't something else amiss ... there can be other reasons for pain, freezing, swelling besides 'nerves."

Did anyone ask the surgeon why a knee operation affected your foot.... Did you or could you ask your referring doctor..... can you get a copy of the operation report? Plus a copy of the "nerve test" results - I have a copy of my nerve test results, just requested it from my doctor at the time. It is all information on our file, we can request copies of correspondence, reports, etc. and i was not charged for copies. I even got last week a full printed copy of my former dentist file .....

I got copy of some of my file from our hospital in Ontario under freedom of information act.... not for legal purposes but I wanted copy as no longer have a family doctor.

my daughter has a few friends who have had knee surgery and i can ask her to ask them if they have any foot pain etc.... and am sure you will get some more comments from the many regulars on this site.... hope you get to the bottom of this issue. J.

I talked to my primary care about and he is requesting copies of everything for my file. I am supposed to see him on the 8th but I think I am going to request to see him sooner and ask for a doppler just to be sure there is no blood clots as well. This is my 3rd one and I have never had a problem with my foot. The surgeon said everything is in order and he said when they can't find out what is causing it they blame neurology. So they did an EMG and said it was normal but something they did made my toes stop tingling for a moment it came back with a vengeance. some times I can't put shoes or socks on. Once I settle down for the night it starts to contract and hurt so bad it's stays so sensitive that I can barely keep a sheet on it. Today is the first day that it has made me cry. cause I am stuck be tween the rock and the hard place.

oh sorry @wannie i hadnt realized this issue has been discussed for many years, i just had a quick look and dozens of similar situations and advice GroupsJoint ReplacementsFoot neuropathy after total knee replacement
Not sure if still current, maybe a moderator can advise... seems this is not uncommon to have foot issues after knee surgery!!! I had no idea! Dozens of patients having foot issues after knee surgery, horrible! Am off to bed as 10pm where i am but will take another look tomorrow and ask my daughter aboit her friends surgery and also tell her about this happening in case she ever needs knee surgery, in fact my husband has very very painful knee and will discuss all this with him... its one thing to be warned of a possibility of this happening, but not to be warned, or to be shrugged off after, not right! TAKE CARE, BEST OF LUCK TO YOU, J.

Twins!!! 🤣

Hello @wannie, I would like to add my welcome to Connect along with @lacy2 and other members. There is another discussion where members are discussing conditions and symptoms similar to yours. You might want to read through the posts and learn what others have shared on problems after a knee replacement. It's good that your primary care doctor is requesting copies of everything done for your file. I would also keep a daily log of any new symptoms that might pop up and how you feel pain wise along with a list of questions for the doctor at your upcoming appointment. You can find some good information on how to plan your conversation with the doctor on The Patient Revolution website here: https://patientrevolution.org/visit-tools

Foot neuropathy after total knee replacement: https://connect.mayoclinic.org/discussion/foot-neuropathy-after-total-knee-replacement/

Can you provide an update after your appointment?

Hello. I am Cindy. I have had neuropathy for about 15 years. I have numbness and tingling that started in one toe originally, that has now progresses to both feet and legs to the knee. I have no pain. Recently in the last year, I have had increase in irritating sensation in both legs. I believe initially this was caused by the lockdown and lack of access to exercise facilities. This year I have changed to a sugar free, high fat diet, which helps a lot. I am not diabetic. I am also back to the gym. In June of 2020 I had decompression surgery on one foot and stem cell infusion on both feet. Though the decompression surgery has had very little affect, the stem cell infusion has been valuable. I have had much more feeling in my feet and calming in my legs. It seems to be waning a bit so I may need another infusion in the future. I also am take a plethora of vitamins, after having all vitamins minerals tested last year. I am not sure if that is having any affect on the neuropathy.