Looking for a doctor who treats anti-mag polyneuropathy

Posted by wcooke @wcooke, Dec 22, 2025

I was diagnosed with anti mag in 1991. None of the standard treatments worked. I need a doctor who actually specializes in the treatment of anti-mag. I have seen several neurologists over the years and except for the first doctor I saw in 1991, none of them actually specializes in anti-mag. Unfortunately, the first doctor I saw no longer practices medicine. All suggestions are welcome. Thanks in advance.

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positivehealth | @positivehealth | Jun 14 7:31pm

In reply to @tanvisingh2007 "@positivehealth yes they do" + (show)

@tanvisingh2007

positivehealth | @positivehealth | Jun 14 7:33pm

In reply to @kmb205 "I’ve been diagnosed with anti-mag neuropathy in the last few months. I’ve got an appt in..." + (show)

@kmb205

wcooke | @wcooke | Jun 14 8:04pm

In reply to @kmb205 "I’ve been diagnosed with anti-mag neuropathy in the last few months. I’ve got an appt in..." + (show)

@kmb205 The pain, numbness, tingling, etc. are in my feet and ankle area. Progression over the years since 1991 was slow but recently seems like things are getting worse at a faster rate. Pain is constant 24/7. I do not fall down but if I am walking across uneven ground, I am not stable. If walking across a flat level floor, no problems with stability. Even before I came down with anti-mag problems, I did not have a strong gait while walking or running. Now I cannot run at all, and my gait is much worse. I sort of shuffle walk. But at least I am not in a wheelchair, and I do not use a cane or walker.