Has anyone found a treatment that helps with peripheral neuropathy?

I keep learning more and more from this forum, so thanks everyone! Today a comment about Benfotiamine, a more absorbable form of B1, led me back to a site I rely on a lot — neuropathyresource. This is a link to the main page about supplements, https://neuropathyresource.com/topics/supplements-and-nutrition/

This summarizes the real, scientific evidence about what works and what is iffy. I’ve been taking R-alpha-lipoic acid and methyl B-12 since mid-March and aceytl l-carnitine, Co-enzyme Q10 and Benfotiamine since June 1. As I really began paying attention to even small changes in my pain and balance, I realized that any sugar has an immediate negative effect, with pain shooting up into “no way can I sleep” mode. The supplements, avoiding sugar and a 6-treatment course of focused shock therapy on both feet have cut my pain levels at least 50% in the past 2-3 months. In turn, this means I can now start a beginner’s walking practice and that exercise is also helping a lot.
I’m not taking any pain meds, since several doctors have pushed them on me, and all have given me severe side effects.

Regrowth, or re-mylenation of nerve fibers, happens slowly, about 1mm per day, and it’s important to start finding out what works and implementing as early as possible after a diagnosis. It’s not likely that I will ever be completely back to what passed as “normal” before my peripheral (idomatic) neuropathy began in 2020, but I am very hopeful about the changes so far.

oohh! thanks -STARTING MY FIRST TREATMENT TOMORROW WILL SEE WHAT HAPPENS

@feygirrl
Vitamin c grows nerves.
Vitamin B12 coats them with insulation. Seniors absorb less B12
Take the supplement
METHYLCOBALAMIN.

I have tried Hempvana nerve cream and capcaisin. I really like capcaisin the best. I massage it into my feet morning and night. My toes and feet feel a lot better so far.

I have tried capcaisin and I massage it into my feet. It feels 90% better. I hope it helps you. Capcaisin HP

take about 1.5 mg daily. Preferably squirted into the inner cheeks or under tongue. Better absorbed when taken in such a way.

Pregabalin. I am on a dose of 25mg but i take at least 2 pills per day. It is effective.

Yesterday, i was at Costco for an hour or more wearing sneakers. My feet got hot and i could not get home fast enough to kick my sneakers off.

It is very difficult to find good footware esp when you are a size 12.5

All of the comments refer to treating the pain of neuropathy. My neuropathy (which I have had for almost 30 years) has no pain (thankfully). SO - how do I treat the loss of use?

@joeorsini
I dont have pain but very uncomfortable sensations. Its due to large fibre sensory motor polyneuropathy in my case. I’ve only had it maybe two years and I can barely walk anymore and my arms get sore now if I lift them up.

All Ive been told to do is exercise but its very hard to do in my condition. Im bringing this up again next doctor appt because at this rate I will be completely immobile sooner than later.

I’m expecting it at some point though cause im not even 50

Sorry to hear about your PN, especially about the difficulty in moving.
In my case at first I barely noticed it, and moved fairly normally for 20+ years (I am now 87). The real problem began 5 years ago when my 2nd open heart surgery put me flat on my back for several months, and it has been
struggling with a walker ever since, and getting worse. I still regularly exercise (without pain) but it continues to get harder. However, IT IS THE ONLY TREATMENT I HAVE EVER HAD.
So, I guess my advice to you would be to do the best exercise you can accomplish, pain and all.
Joe