Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
Interested in more discussions like this? Go to the Neuropathy Support Group.
Connect

@athenalee, Just from a quick glance the Nuturna Neuropathy Support Formula contains a lot of the same supplements as the Protocol 525 but they don't list how much with the exception of 600 mg ALA and they do not specify ALA, S-ALA or na-R-ALA. The Protocol 525 na-R-ALA supplement is a morning dose of 2 capsules and evening dose of 2 capsules for 1200 mg. The other difference that would bother me is B6 that the Nuturna proprietary blend contains. That is because unless you are deficient in B6 it's the one that can make your neuropathy worse (in my non medical opinion).
- B-6 vitamin danger!: https://connect.mayoclinic.org/discussion/b-6-vitamin-danger/
No matter what type of supplement is used, I would run it by my doctor or pharmacist before using it.
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2 Reactions@poppsy1 Oh my goodness, I wish I could help you with a good answer. Perhaps you should ask for a specialist referral by this doctor you have, who considers you neurotic (which of course you're NOT). It's totally unacceptable for your doctor to think of you in that way. Can you ask for a second opinion by another doctor? Or, change doctors? Warm regards, Laurie
I am right there with you. I feel as though people don't believe me. That I am making it up to get out of working.... I would give anything to change bodies. I would love to be able to function without pain or doped up on meds
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1 ReactionThank you John! You are a wealth of information. I’m just doing research right now in preparation for my upcoming neurologist visit. I want to also be prepared with what ingredients the supplement formulas contain due to drug interactions. I would certainly rather try natural remedies first before any new prescription medications. I’ve been taking a low dose of Neurontin/gabapentin for about 1.5 years for liver pain, which I’ve increased to 200-300 mgs at night, as it certainly helps with the pain and discomfort in my legs and feet. But, I know it’s not healthy and certainly doesn’t help to slow the neuropathy.
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2 Reactions@poppsy1, You have my sympathy for the medical issues facing you. Please consider going to a doctor who will listen to you and give you more than pain pills. A good doctor can refer you to specialists. Sometimes pain pills just won't work. You may have more than one issue facing you, but please locate a different doctor who is willing to help you. Best wishes, @joybringer1
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1 ReactionTo start, my apolgies for this question because it has probably been answered many times bofore. I would like to try acetyl l carnitine for my night time pins and needles in my feet due to non diabetic peripheral neuropathy ( I take R-ALA 600 mg at present). Any wisdom on this and what is a typical dosage? It is available in 500 mg, 1000 mg. Thanks in advance.
I'm not sure there is what you can call a typical dosage but I can share I take 500 mg of Acetyl-L-Carnitine along with 100 mcg Vitamin K2 twice daily (morning and evening) along with 600 mg of na-R-ALA morning and evening and the other supplements included in the Protocol 525 - https://theprotocol525.com/wp-content/uploads/2020/09/Instructions_Introduction.pdf.
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1 ReactionThank you very much for the information. Do you know if anyone has had any good or negative results or feedback?
Rod
Does the R-ALA 600 mg you currently take help with the pain at all? I am taking 300 mg gabapentin 2-3 x a day plus 1/2 50 mg tablet of tramadol that mostly handles the pain. I want to try the ALA and possibly the Acetyl L-carnitine but would like to hear how it works for you. I don't have diabetes. I think my neuropathy is caused by post treatment Lyme disease.
Hi John,
What is your opinion of the protocol 525? I was considering trying it but it’s just kind of uncertain buying an unknown brand of vitamins?
Thank you