Likely metastatic lobular cancer: How do you deal with fear, PTSD?
Hi there. First time posting. I had ILC in 2011 and every kind of tx there was-chemo, lumpectomy, radiation, BMX, Tamox and Aromasin (currently 12 years on an AI). I've been experiencing urinary incontinence and urgency, and a CT in August and an MRI (done by Mayo) in Nov. confirmed there is something going on in my ureter as well as my abdomen. I had a cystoscopy last week which looked mostly okay-a small area needed a biopsy to rule out, but the MRI was shocking because of the abdominal thing (highly suspicious) and a "lesion" on my iliac crest. My NP urology said the doc didn't think it looked like bladder cancer and I've been forwarded to the Breast Cancer Center at Mayo for care. I had the PET at Mayo Phx yesterday and I'm terrified that when I see my doc at Mayo for results on the PET and the CA 27-29 on Friday, I'll have lit up like a Christmas tree.
I have extreme PTSD from losing my late husband to cancer, my own cancer dx, and now my husband's advanced prostate cancer.
I need some hope and reassurance that ILC 4 isn't as bad as I read on Dr. Google. I know not to do it, but PSTD brings hyper vigilance and catastrophic thinking, and I started Swedish Death Cleaning yesterday because I am so worried my oncologist will tell me there's nothing they can do and release me to hospice.
I'm 65, live at altitude and hike/hot yoga/Pilates apps 5 times a week, I don't smoke, drink to excess, cholesterol good, I'm lean, in great health, the best of my life, actually. All CBCs were clear in summer during my regular check up, I've had no pain anywhere, no blood in urine, but I was dx with IBS in July and I wonder if it isn't related to this suspicious area they can see in my abdomen.
I need some hope that I have a few years left.
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