Living with Neuropathy - Welcome to the group

I believe you were responding to someone else, so I hope it is ok if I reply.I have epilepsy too. It started to kick up when I was first diagnosed with neuropathy, peripheral. I take Levitracetam which helps the seizures, but I wonder if it isn't the cause of my walking difficulty. I tip sometimes to one side, odd isn't it? Well, it is so nice to find someone that has seizures and Neuropathy. Thanks again, Beth

Benita Little 73, retired Special Educator Neuropathy in feet for years, Itching in vaginal area of no obvious cause, recent itching in hands and lower arms, as well as itching in head. Have seen dermatologist who says itching is internal. Had bladder, kidneys, chest xray, pap smear, culture, to rule out cancer. Feet were numb, now ankles and feet itching. I do not have pain. Waiting on brain scan. Can itching be neuropathy? Can vaginal itching with no obvious cause be neuropathy? I am living in Hell right now. Except for numb feet, these other things all started 3 years ago when I had no electricity for 3 days in a freeze. The vaginal itching is the worst but there is no sign of anything there. Any help appreciated. Don't know if I'm in the right place.

@jakedduck1 Besides the reasons you mentioned I would think doctors would not recommend it for seizure patients. Not being able to feel your tongue can become a safety hazard in case the tongue is swallowed or causes issues during a seizure. Toni

@jakedduck1 and @artist01, I am so sorry both of you are having such difficulties! Next time I begin to whine over some mild discomfort, I'll think of both of you and hush! Thank you both for being so upbeat and positive despite these growing challenges.

@avmcbellar
I don't believe it's possible to swallow your tongue although when unconscious the tongue is more likely to block the airway. One reason why the recovery position of being on your side is important.
Against everything you read I'm a proponent of seizure bite sticks during a seizure.
Jake

Hi Toni and Hank/Linda @jesfactsmon, please forgive if this is a repeat. I 've gotten some great advice about supplements here on Connect and recently joined ConsumerLab.com after learning about this site here too. I have been extremely impressed with the wealth of information and content they have on supplements and many more things. I believe I paid about $47 for the year but it's a little bit cheaper to buy a 2-year subscription. They send emails and I can't stop reading the many, many excellent, comprehensive subjects they report about. So far, it's been well worth the money!

Warmest wishes, Sunnyflower 😊🙏❤️

@artist01
“Stoic?” not hardly.
Although I did have problems excepting my diagnosis in the beginning, I came to the conclusion that “it is what it is.” I needed to move past the seizures and the stigma which was so bad in the ’60s. I think coping with life is much easier than ignoring your fate. I only have one hang up. I suppose I could see a psychologist and try to figure it out. A dear friend of mine was a psychologist and I never thought to ask him. He died in 2009 on his driveway from Convulsive Status Epilepticus. I had a great family and terrific friends who didn't care if I had Epilepsy.
I don't mind the loss of memory or Neuropathy but to this day losing the ability to play the piano like I once did is something I still have problems coping with though I haven't any memory of ever playing it. I went to a parochial school and although I don’t remember I was told according to my family I could play the piano in my junior year in chapel every morning which I was looking forward to but was kicked out of school when I was a sophomore. Couldn't blame them. Hard to learn during seizures and sleeping for hours or days at a time after one. So “it is what it is.” I just wish I could deal with this one issue better. I suppose I really should get rid of the piano.
Take care up in the Artic where you must live,
Jake

Hi @jakedduck1 I am not an expert as a neurologist would be on the subject but I believe there are stages of neuropathy. Our nerves are our sensors for pain so if our nerves don’t work properly, we would experience numbness and not feel pain. My belief is the neuropathy has progressed to a worse stage. Regardless of the stage of neuropathy, exercise can help to keep it from progressing by encouraging neurogenesis Seems like exercise helps with our health in so many ways. Can’t get away from it. A healthy diet included would give our body the proper fuel and nutrition it needs to combat whatever ailment. Kind of giving our body a push start. Sorry, take caution with your five food groups. Nothing wrong with having a treat now and then. No big portions though. Indulging in small amounts is perfectly fine for me. Toni

@avmcbellar
Thank you,
I just read more about the various stages of neuropathy here they are.

Stage One: Numbness and Pain
Stage Two: More Regular Symptoms.
Stage Three: The Pain Reaches Its High Point.
Stage Four: Constant Numbness.
Stage Five: Total Loss of Feeling
No longer any nerves capable of
sending signals to your brain.
Thanks again,
Jake