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Anyone familiar with lymphomatoid granulomatosis?
Autoimmune Diseases | Last Active: 8 hours ago | Replies (22)Comment receiving replies
@mari2ferris
My 44 year old son was diagnosed with this in march.
He will be starting the same regimen plus methotrexate next week. How are you doing? Are you tolerating the chemo? Any insight would certainly help. Such a rare and awful disease!
Thank you
Replies to "@mari2ferris My 44 year old son was diagnosed with this in march. He will be starting..."
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@jvohnoutka Welcome to Mayo Clinic Connect! I’m sorry that you came to MCC because your son has this bad disease. But all the members here will do their best to help you! You might also wish to check the Caregiving discussion group as your son may need your help with everyday things. Is your son married with children? Remember, we are here 24/7/365 to answer your questions. Please ask the members here anything and everything==we will try our best to answer.
You might also want to try this link to National Organization for Rare Diseases:
https://rarediseases.org/rare-diseases/lymphomatoid-granulomatosis/