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Yes my PCP is the one who ordered the first 24hr urine test.
I saw her yesterday and was given a referral to Mayo Clinic here in Scottsdale, AZ. It states a Neurologist referral.
She also gave me a several orders to be done blood & urine. I was advised to wait on those until I spoke with the onsite Labcorp tech & Mayo Clinic when they called. Im in a rural community and the Labcop technician did not have the materials to do a repeat urine ALA. So, I am waiting.
It's hard to think I have a rare genetic desease. My father passed away in 1987 from ALS. He was 56. He was diagnosed at The University of Washington. He went very quickly, maybe six months from diagnosis. I was his only child.
I appriciate the link and any other info you send over.
Replies to "Yes my PCP is the one who ordered the first 24hr urine test. I saw her..."
Hi @azsbb3420 Just checking in with you… Has there been any news regarding your referral Mayo Clinic in Arizona?
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@azsbb3420 If you were given a referral to Mayo yesterday, it can take a few days to process. If you haven’t heard anything by next week it’s not a bad idea to call Mayo’s appointment department to see the status of your request. Here is a link to Mayo’s page.
It will have the phone number for the Scottsdale Mayo Campus. http://mayocl.in/1mtmR63
I’m so sorry about the passing of your father from ALS. At 56 he was so tragically young. That’s such an unfair disease.
I hope you get the appointment soon so that you can get on with your life! Waiting is so anxiety producing, isn’t it?