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Anyone with Hepatocellular Carcinoma (Liver Cancer) want to share?

Liver Cancer | Last Active: Jun 27 7:33pm | Replies (56)
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Profile picture for tommyandsandy02 @tommyandsandy02

@tomrennie well there was 2 paths open to him. Immunotherapy which in his condition could cause no symptoms or could cause inflammation of lungs, kidneys, heart and liver causing hepatitis. Treatment could extend his life by days or months possibly a year but it could shorten it if he gets inflammation in the wrong place, or he could choose pallative/hospice care. With all the could be and might we chose pallative hospice care. Which doctor also nsaid could extend his life by treatingnthe symptoms as they arise. We both decided this was what we were most comfortable with. It will be a progressive decline with treatable symptoms, no hospitals to treat random infections, just peaceful days at home doing what he wants if he wants . He chose quality of life over the possibility of more quality with no guarantee it would even give him that

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Replies to "@tomrennie well there was 2 paths open to him. Immunotherapy which in his condition could cause..."
Turkey, Volunteer Mentor | @tomrennie | Jun 12 4:07pm

@tommyandsandy02 I understand. You made a decision that works for both of you. I am happy for you both. Please, if you have any other questions, or if I can help in anyway, please don't hesitate to ask. Being a caregiver has its own unique challenges. I felt them in your words. I want to offer the link to our Caregivers group. You might find some comfort from others providing care to a loved one like yourself: https://connect.mayoclinic.org/group/caregivers/

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parrot53 | @parrot53 | Jun 13 7:07am

@tommyandsandy02 it is good to see you were given a choice and considered the options. Wishing you both the best possible outcome.

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Colleen Young, Connect Director | @colleenyoung | Jun 26 9:21am

@tommyandsandy02, caregivers often report that palliative and hospice care lets them return to the role of spouse, child, parent, while the hospice team focuses on the medical needs and comfort. Hospice also provides support for family members. Don’t hesitate to let them know about your needs, concerns or if you just want to talk with someone.

Sandy, how are you doing today?

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