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Book Recommendation

Posted by dptrainor @dptrainor, Jun 9 6:40am

I am new to this group. Just diagnosed with prostate cancer and have consults coming up at end of month with medical oncologist, radiation oncologist, and prostate surgeon to discuss treatment options and initial framing of a plan. I have been reading and watching as much as I can from internet. But, I thought perhaps I should have a book. I went on Amazon and unfortunately there were so many of them, I got overwhelmed again. Which seems to be the biggest challenge of getting this disease is getting overwhelmed by information of all kinds and qualities. In any case, would someone recommend a known good objective book for someone trying to navigate this maze. Thank you for any Book Recommendations. I would like a book to reference. Thank you, Dan

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dptrainor | @dptrainor | Jun 12 6:11am
In reply to @ucla2025 "Guide to Surviving Prostate Cancer by Dr. Patrick Walsh. It is becoming a little dated by..." + (show)
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Guide to Surviving Prostate Cancer by Dr. Patrick Walsh. It is becoming a little dated by now but it has LOTS of useful information. I ordered it soon after my husband was diagnosed and I’m glad I did. One thing that I really liked about it was the tone of writing. Almost as if a doctor was holding my hand during the start of the journey. Like you, I found out about it by joining this support group. Our urologist was no help. In fact, he sent us off with a free “book” put out by a huge pharmaceutical company. No bueno!

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@ucla2025 Thank You,

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dptrainor | @dptrainor | Jun 12 6:13am
In reply to @gkm "Our Support Group Group Leader highly recommends this book if you are struggling to make the..." + (show)
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Our Support Group Group Leader highly recommends this book if you are struggling to make the decision regarding surgery or radiation. The book is available on Amazon and costs $19.98. AI's comment "The Decision: Your prostate biopsy shows cancer. Now what? is a highly recommended patient guide written by Dr. John C. McHugh, a urologist who successfully navigated a prostate cancer diagnosis as a patient. The book offers an insider's perspective on evaluating treatment options."

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@gkm Thank you for this fine recommendation.

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dptrainor | @dptrainor | Jun 12 6:18am
In reply to @doyourresearch "Hi Dan. My husband was diagnosed with prostate cancer in 2014 and has been on active..." + (show)
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Hi Dan. My husband was diagnosed with prostate cancer in 2014 and has been on active surveillance ever since. There are two books I recommend reading as soon as possible following diagnosis. The first just came out earlier this year, I believe, and is titled "Fight Cancer Like A Man" by Dr. Stephen Petteruti. I also recommend checking out his website "intellectualmedicine", as well as his YouTube Channel under the same name. I've never looked at prostate cancer the same after being introduced to some of his concepts. A second book that was enlightening to me was "Overdiagnosed" by Dr. H. Gilbert Welch, Dr. Lisa M. Schwartz, and Dr. Steven Woloshin. That book was published in 2011, but I just became aware of it recently. Chapter 4 of that book is entitled "We Look Harder for Prostate Cancer, How Screening Made It Clear That Overdiagnosis Exists in Cancer". It blew my mind that this book was published 15 years ago. When researching, it is important to look at differing perspectives. You will not learn of the concepts discussed in these books in conventional medicine. Its "standards of care" simply do not allow for it. Best wishes on your journey. Love and light to you and yours.

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@doyourresearch Thank you for your recommendations. Dan

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dptrainor | @dptrainor | Jun 12 6:22am
In reply to @michaelcharles "Prostate Cancer Foundation PCF.org has 2 free patient guides, one for initial diagnosis and the other..." + (show)
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Prostate Cancer Foundation PCF.org has 2 free patient guides, one for initial diagnosis and the other for metastatic PCa, free by mail or download.
Also recommend Dr Walsh's book, updated I believe in 2023.
Best wishes.

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@michaelcharles Thank you for recommendations. Dan

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climateguy | @climateguy | Jun 13 1:13pm

I liked "Patting the Shark: A Surfer's Journey: Learning to live well with Cancer" by Tim Baker. https://www.amazon.com/Patting-the-Shark/dp/1760898910

From Amazon's blurb: "A surfer’ s journey learning to live well with cancer. Tim Baker was living the dream. A best-selling and award-winning surf writer with a beautiful family, a lifetime of exotic travel and a home walking distance to quality waves. That all changed on July 7, 2015, when he was diagnosed, out of the blue, with stage 4, metastatic prostate cancer. So began a descent into the debilitating world of aggressive cancer treatments and a fight for a survival as brutal as any big wave hold down. Tim writes candidly and with a raw vulnerability about this perilous journey through chemotherapy, hormone therapy, radiation and surgery, and his own determined lifestyle strategies to maintain mind, body and spirit."

I found out about this book when listening to a podcast put out by Australian urologists. One of them said the publication of this book caused a lot of buzz in the urology community of Australia. Apparently, many were saying a similar thing: it opened their eyes as to the consequences of the ADT they so blithely prescribe without much thought to their patients.

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