Physical Therapy Unexpected Results
Hello everyone,
I'm starting this discussion to see if anyone else has had unexpected or worsening results from physical therapy.
Since 2021 I've had constant cramping in my right calf, with muscle atrophy appearing in 2023 after PT. In 2021/22 I saw orthopedic doctors for the issue. In 2023 a spine specialist ordered a lower back MRI, but insurance required 6 weeks of PT first. My therapist and I agreed on a more aggressive approach. After just one week I lost major strength in my right leg—the PT literally said, "WTF is going on with your leg?" Single-leg presses showed my left leg could do over 200 lbs while my right couldn't manage 80 lbs. We spent the remaining sessions comparing my legs to show insurance that PT wasn't the answer.
In 2024 I started working with Mayo Clinic (no PT). In 2025 Blue Cross Blue Shield gave me free virtual PT through Hinge Health. The same pattern happened: after a week of exercises my right leg felt nothing and grew weaker. My Mayo neurologist ordered new tests—all normal or negative.
In 2026 I was referred to a rheumatologist and then PM&R at Mayo. They recommended trying PT again through Mayo. I started three weeks ago and my right leg has weakened further each week. All my tests—MRIs, X-rays, EMGs, vascular studies, blood work, and nerve tests—remain normal or negative. It's become a medical enigma.
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I have been working with a Neurologist since 2024 from Mayo Clinic. Earlier this year he responded to one of my messages and informed me there's nothing more they could from the neurology department. They have done numerous EMGs, MRIs and other nerve tests and all come back normal or negative.
My PCP tried referring me to vascular specialist with the Mayo Clinic but it was rejected. They did schedule a exercise or stress Ankle-Brachial Index for the end of the month. Depending on results maybe that will allow me to see a vascular specialist.
My PCP is also the one who ordered the muscle biopsy after I shared a link to a very rare muscle disorder called Miyoshi myopathy. My symptoms match perfectly but my tests results do not. Below is the same link
https://medlineplus.gov/genetics/condition/miyoshi-myopathy/
I am against the aggressive PT that is results oriented in measuring knee flexion. I fired my PT after she immediately told me my bend was not enough and it was going to really hurt, but we had to work on it. She was critical and negative. I did my PT gently at home, using exercises she gave me. My doctor was pleased with my progress at the subsequent appointments. I don't believe in continually injuring the knee with aggressive therapy. In time, the knee heals with gentle consistent therapy and ADLs
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3 Reactions@bluelizard I also have a full thickness near complete glute minimus tendon tear with fatty atrophyed minimus muscle because I’ve had this sense 2017 wasn’t found till 2025. Was told nothing could be done but there is a salvage surgery where they use a cadaver tendon and a Maximus muscle transfer. Post op surgery is grueling for about 6-12 weeks. I don’t know how much this surgery has been done each year but would love to hear if it’s worth having it done
@grandma71 I can only imagine grueling post-op from the surgery you describe. I'm not sure how I've torn these tendons; it's something that you can pinpoint an injury or trauma. I fear it's just wear and tear on my aging body. I've never been a girl for exercise, but had an active life growing up on a farm and even now manage my household in terms of shopping, cooking, laundry. Sadly I've given up gardening at this point - just too hard getting down and up.
@genie15
Well said! I can't tell you how much ai agree with you about the therapist mindset in this country. My PT was a young athletic type. Within the first few minutes she shamed my 72 year old knee for being "behind" and said I would need a lot of painful therapy. Up until then, I had been faithfully doing my exercises prescribed by hospital home PT and progressing wonderfully. She blew my confidence and discouraged me. I was already fragile physically and emotionally and I knew I couldn't thrive with her guidance. I fired her and just did my exercises at home and had two good checkups at the doctor so far. I am so, so sorry for your experience, and thank you for posting, so you can help others to avoid this. God bless.